Analysis of Pioneering Computable Biomedical Knowledge Repositories and their Emerging Governance Structures  

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作  者:Philip Sahr Amara Marisa Conte Allen Flynn Jodyn Platt Marie Grace Trinidad 

机构地区:[1]Department of Learning Health Sciences,University of Michigan Medical School,Michigan 48109-0624,USA [2]Taubman Health Sciences Library University of Michigan,Michigan 48109-1382,USA [3]School of Public Health,University of Michigan,Michigan 48109-2029,USA

出  处:《Data Intelligence》2022年第3期653-669,共17页数据智能(英文)

摘  要:A growing interest in producing and sharing computable biomedical knowledge artifacts(CBKs) is increasing the demand for repositories that validate, catalog, and provide shared access to CBKs. However, there is a lack of evidence on how best to manage and sustain CBK repositories. In this paper, we present the results of interviews with several pioneering CBK repository owners. These interviews were informed by the Trusted Repositories Audit and Certification(TRAC) framework. Insights gained from these interviews suggest that the organizations operating CBK repositories are somewhat new, that their initial approaches to repository governance are informal, and that achieving economic sustainability for their CBK repositories is a major challenge. To enable a learning health system to make better use of its data intelligence, future approaches to CBK repository management will require enhanced governance and closer adherence to best practice frameworks to meet the needs of myriad biomedical science and health communities. More effort is needed to find sustainable funding models for accessible CBK artifact collections.

关 键 词:Computable Biomedical Knowledge GOVERNANCE REPOSITORY TRUST Sustainability 

分 类 号:R318[医药卫生—生物医学工程] TP311.13[医药卫生—基础医学]

 

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