使用核心讨论组方法研究肺结核病人生存质量的构成领域和方面  

THE USE OF FOCUS GROUPS METHOD IN THE STUDY OF DOMAINS AND ASPECTS OF QOL OF TUBERCULOSIS PATIENTS

作　　者：刘丽红[1] 郝元涛[2] 黎明[1] 林丹儿[2] 陈剑波[2] 邹惠英[1] 

机构地区：[1]深圳市龙岗区人民医院,深圳518172 [2]广东中山大学公共卫生学院医学统计与流行病学系

出　　处：《现代预防医学》2008年第11期2088-2091,共4页Modern Preventive Medicine

摘　　要：[目的]目前国内外尚未发现成熟的肺结核病人生存质量专用量表,本研究采用核心讨论组方法,探讨肺结核病人生存质量的构成领域和方面。[方法]深圳市龙岗区和宝安区41名肺结核病人、家属及医务人员按照不同类型分为6个核心讨论组,使用半结构化的形式开展核心讨论。讨论过程进行书面记录和录音,并采用定性分析方法对讨论结果进行分析。[结果]肺结核病人的生存质量主要由4个领域、8个方面构成,分别为:生理机能(包含一般生理、疾病生理)、心理机能(包含消极心理、治疗心理、歧视感)、社会机能(包含治疗经济、社会支持与环境)及健康教育领域。[结论]肺结核病人生存质量的构成领域和方面除了普适性问题外,还包含了体现肺结核病人特异性的问题,诸如疾病的心理负担、被歧视感、治疗的经济负担及健康教育的需求等。核心讨论组方法有助于构建肺结核病人生存质量测定量表的领域和方面。[Objective] There weren＇t QOL scales for tuberculosis patients in China. The purpose of this study was to understand the domains and aspects of QOL of tuberculosis patients. [Methods] 41 people were divided into 6 focus groups, including outpatient group, inpatient group, family member of patient group and professional group. Each group was interviewed by semi-structured form. Video tape and the written recording were used and these materials were analyzed by qualitative analysis method. [Results] The results yielded QOL of tuberculosis patients were constructed by 8 aspects and 4 domains： physical function （general physical aspect, specific physical aspect）, psychological function （negative feeling, therapy feeling, discrimination）, social function （economic burden, social support and environment） and health education. [Conclusion] Besides the generic domains and aspects, there are specific domains and aspects of tuberculosis patients such as economic burden, discrimination and demands for health education. The focus group method could be used as a practical method for QOL study.

关 键 词：结核/肺 生存质量 核心讨论组 领域 方面 

分 类 号：R521[医药卫生—内科学]