机构地区:[1]首都医科大学附属北京地坛医院 [2]北京红丝带之家,北京100015 [3]北京回龙观医院,北京100096
出 处:《中国艾滋病性病》2012年第10期662-663,672,共3页Chinese Journal of Aids & STD
基 金:中盖艾滋病项目~~
摘 要:目的通过对北京市艾滋病病毒(Human immunodeficiency virus,HIV)抗体阳性流动人群的需求状况调查,探讨对该人群管理的对策。方法对2010年8月-12月间,在北京地坛医院就诊和咨询的201例感染HIV的流动人口进行调查,了解其需求状况,并对资料进行分析,总结对策。结果当遇到艾滋病和机会性感染相关问题时,病人通常寻求帮助的机构主要为医疗机构(81.6%)、网络(79.1%)和社会组织(42.8%)。病人最迫切的需求主要是艾滋病的最新进展(54.7%)、看病费用(44.3%)、如何避免耐药等药物方面知识(38.3%)等。139例(69.2%)的病人表示需要红丝带之家的帮助,希望得到的帮助主要是短信或者电话咨询服务(53.2%)、邮寄药品(41.3%)、医疗转介(40.8%)等。大部分病人(66.1%)表示不知道当地存在相关的非政府组织。草根组织提供的服务主要包括艾滋病知识培训(54.4%)、物质关怀(32.4%)、走访(23.5%)、情感交流(33.8%)等。101名(50.2%)病人表示当地疾病预防控制中心(疾控中心)未进行随访,有111名(55.2%)病人表示愿意参加草根组织或者疾控中心组织的活动。136名(67.7%)病人表示愿意参加志愿者服务。结论病人需要相关的支持组织,依托医院的非政府组织(Non-government organization,NGO)和基层NGO可取到较好的互补作用;需要建立更多的从事艾滋病关爱的NGO,促进疾控中心、感染者、NGO之间形成良性互动,共同维护感染者的利益。Objective To investigate the actual needs of the HIV infected floating population in Beijing and related social management system, and to explore relevant strategic responses. Methods From August to December of 2010, 201 cases were involved in this research from the Home of Beijing Red Ribbon of Beijing Ditan Hospital, including its outpatients, inpatients and visitors. The questionnaire survey and comparative analysis were conducted in an attempt to find out the actual needs of this population. Results The patients who were affected with AIDS and opportunistic infection often sought medical care from medical institutions (164 cases, 81.6 %), networks (159 cases, 79.1 %) and social organizations (86 cases, 42.8M). The most urgent needs of them were learning of the latest advances in AIDS (54.7%), cost of medical care (44. 3%), as well as the knowledge on how to avoid drug resistance (38. 3%). There were 39 patients (69.2%) who expressed their desire of having help from the Home of Beijing Red Ribbon. The main needs included services from SMS or telephone counseling (107 cases, 53.2%), mailing drugs (83 eases, 41.3%), medical referral (82 cases, 40.8%), and publicity materials (65 cases, 32.3%). Most of the patients (66. 1%)did not know that non-government organizations (NGOs) were working in local areas The services provided by the local NGOs included AIDS knowledge training (54.4%), visits (23.5M), material care (32. 4%), and emotional communication (33. 8%). Among the subjects, 101 (50. 2%) had not been followed up bY the local Center for Disease Control and Prevention (CDC). 111 (55.2 N) were willing to participate in the activities of NGOs or CDC organizations% 136 patients (67.7 %) desired to participate in the volunteer service, and would like to provide help for other infected people and AIDS patients. Conclusion HIV infected floating population needs support and care from related organizations. NGOs backed by professional
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