脊髓损伤患者照顾者照顾负担的质性研究  

Qualitative study of care burden of caregivers who take care of patients with spinal cord injury

作　　者：马海萍[1] 卢惠娟[1] 姚剑英[2] 杨晓莉[3] 

机构地区：[1]复旦大学护理学院,上海 [2]南昌大学第二附属医院骨二科 [3]复旦大学华山医院

出　　处：《中国实用护理杂志》2013年第17期1-4,共4页Chinese Journal of Practical Nursing

基　　金：江西省卫生厅科技课题（20133061）

摘　　要：【摘要】目的探讨脊髓损伤（SCI）患者照顾者照顾负担的真实情况。方法采用质性研究中现象学研究方法，以半结构访谈法收集江西地区15例脊髓损伤患者家庭照顾者资料，并以Colaizzi7步分析法分析资料。结果归纳出4个主题：社会支持系统薄弱，经济负担沉重，照顾能力不足，身心疲惫；其中身心疲惫包括体力透支、生活方式改变、悲伤，无助感3个次主题。结论脊髓损伤患者照顾者照顾负担沉重，包括社会、身体、心理、照顾能力不足4个方面的负担，护理工作者应关注照顾者的健康状况，针对性地进行护理干预，使照顾者较好地适应照顾者角色，从而维持和促进患者及其所在家庭的高水平的健康。Objective To investigate the real situation of the burden of the earegivers who take care of patients with spinal cord injury. Methods Using phenomenological research methods of qual- itative study, information of 15 family caregivers of patients with spinal cord injury were collected through semi-structured interviews in Jiangxi province, and data were analyzed with Colaizzi 7-step analysis method. Results Four themes were summarized： weak social support system, heavy economic burden, insufficient care ability, mental and physical exhaustion; mental and physical exhaustion concluded three sub-themes： burnout, lifestyle changes, sad/helplessness. Conclusions Care burden of caregivers of patients with spinal cord injury includes four aspects： social, physical, psychological, and less caring capac- ity. Care workers should be concerned about the health status of the caregivers, give targeted care interven- tion, so that caregivers can be adapted to the caregivers＇ role, maintain and promote a high level of health of the patients and their families.

关 键 词：脊髓损伤 照顾者 照顾负担 质性研究 

分 类 号：R473[医药卫生—护理学]