济宁农村地区常见出生缺陷患儿致家庭经济负担的调查研究  

The investigate and research on the common birth defect children to the economic burden of the family in the rural area of Jining City

作　　者：关晶[1] 高立[1] 

机构地区：[1]济宁医学院,山东272067

出　　处：《中国优生与遗传杂志》2013年第6期133-134,共2页Chinese Journal of Birth Health & Heredity

基　　金：2011-2012年度山东省医药卫生科技发展项目<农村地区出生缺陷患儿致家庭负担的相关性研究>(2011QW005)

摘　　要：目的了解济宁农村地区常见出生缺陷患儿致家庭经济负担的情况。方法对济宁农村地区4种常见出生缺陷共177名患儿的家庭进行调查,通过调查出生缺陷种类及治疗费用情况,结合生活质量综合问卷(GQOLI)调查,对农村地区出生缺陷患儿致家庭经济负担的情况进行综合评定。结果 177个家庭每年用于对患儿的各种医疗支出均超过家庭收入的90%以上,部分患儿当年医疗支出甚至超过了当年家庭总收入;出生缺陷患儿家庭成员在GQOLI量表的总分及物质生活维度、躯体健康维度、心理健康维度、社会功能维度4个方面得分均低于普通农村人口,且在物质生活维度方面差异最大,差异均有统计学意义(P<0.05)。结论各种出生缺陷在严重影响患者自身生命质量的同时,给农村家庭造成的负担不容忽视。Objective：To understand the common birth defect children to the economic burden of the family in the rural area of Jining city.Methods：390 family members with 177 birth defect children were investigated with the kind of birth defect,family annual total income and disease treatment of expenditure,tested with GQOLI to relevant the qualification to the mental healthy and quality of life.Results：All families for birth defect children with medical expenses are more than 90% of the household total income,many birth defect children with medical spending even more than the total family income.The 4 scale of GQOLI of family members with birth defect children were all belower than the general rural population,especially in material life dimension,the difference has statistically significant（P0.01）.Conslusion：All kinds of birth defect could not only heavily influenced the quality of the patients,but also caused great burden to the family in the rural rare.

关 键 词：农村地区 出生缺陷 经济负担 

分 类 号：R174[医药卫生—妇幼卫生保健]