晚期骨肉瘤患者自我感受负担及影响因素的质性研究  

Qualitative research on self-perceived burden and the related influencing factors in patients with advanced osteosarcoma

作　　者：吴晶[1] 程淑平[1] 吕春梅[2] 

机构地区：[1]哈尔滨医科大学附属第三医院骨外科,150081 [2]哈尔滨医科大学附属第三医院脑外科,150081

出　　处：《中华现代护理杂志》2014年第11期1302-1304,共3页Chinese Journal of Modern Nursing

摘　　要：目的：了解晚期骨肉瘤患者自我感受负担体验及相关影响因素。方法运用质性研究中的现象学方法，对12例晚期骨肉瘤患者进行深入访谈，采用Giorgi现象学研究方法对资料进行分析、整理，提炼主题。结果晚期骨肉瘤患者存在自我感受负担，其影响因素包括疾病转归、经济因素、照护需求及传统死亡观等。自我感受负担对患者自我价值感、治疗及预后造成不同程度的影响。结论晚期骨肉瘤患者普遍存在源于疾病和家属的自我感受负担的痛苦体验，针对不同自我感受负担内容及影响因素，护理人员应该开展有针对性、个性化的健康教育及心理护理。Objective To understand the experience of self-perceived burden and the related influencing factors in patients with advanced osteosarcoma .Methods Twelve patients with advanced osteosarcoma received the in-depth interview through the phenomenological methods of qualitative research , and the data were analyzed and the theme was refined by Giorgi .Results The patients with advanced osteosarcoma had the experience of self-perceived burden , and its influencing factors included the prognosis of the disease ,the family income,the needs of nursing , the traditional concept of death and so on .The self-perceived burden had effects on the feelings of self-worth, treatment and prognosis at different degrees .Conclusions The patients with advanced osteosarcoma had pain experience of self-perceived burden due to disease and their family , and the nurses should carry out targeted and personalized health education and psychological nursing according to the different the content and influencing factors of self-perceived burden .

关 键 词：骨肉瘤 自我感受负担 影响因素 质性研究 

分 类 号：R473.73[医药卫生—护理学]