高原系统性红斑狼疮稳定期患者家庭支持情况的调查  

Family Support in Plateau Systemic Lupus Erythematosus of Stationary Phase

作　　者：李蔚林[1] 孙淑萍[1] 孟红珍[1] 李伟玲[1] 黄维英[1] 

机构地区：[1]解放军第1医院皮肤科,青海西宁810014

出　　处：《解放军护理杂志》2001年第4期3-4,共2页Nursing Journal of Chinese People's Liberation Army

摘　　要：目的 了解高原系统性红斑狼疮(plateau systemic lupus erythematosus,PSLE)稳定期患者的家庭支持情况。方法 采用Smilkstein的 APGAR问卷,由58例 PSLE患者选项填写,调查者计算得分,在分析单项家庭支持功能的基础上,按年龄段、病程、城乡居住分别分组比较,判定其统计学意义。结果 有较多的时间陪伴患者项满意率低(48．3%);＜29岁组,5年组高功能家庭多于＞30岁组,1年组;城乡患者无显著差异。结论 提高家庭支持功能的教育重点是年龄＞30岁,病程1年左右的患者家属。Objective To understand the situation of family support in plateau systemic lupuserythematosus (PSLE) of stationary phase. Methods Fifty-eight patients (male 5, female 53;mean age 29+13 years) with PSLE of stationary phase were questioned about their family supportusing Smilkstein APGA questionnaire, and the statistical significance was compared in terms ofage, course of disease and resident areas (urban or rural). Results Family support in the <29yr. and >1yr. disease history groups was higher than that in the >30 yr. and >1 yr. diseasehistory groups. There was no difference beteeen the urban and rural areas. Conclusion Educationof family support should be emphasized, especially in the families of patients who are older than 30years and whose disease history is about 1 year or longer.

关 键 词：高原系统性红斑狼疮 家庭支持功能 调查 

分 类 号：R593.241[医药卫生—内科学] R473.5[医药卫生—临床医学]