急性白血病患儿确诊初期主要照顾者负性情绪的质性研究  

Qualitative study of negative emotion in primary caregivers ofearlydiagnosed children with acute leukemia

作　　者：李蓉蓉 阐玉英[2] 马金玲 杨琦[3] 张春旭[4] 郑鹏飞 Li Rongrong;Chart Yuying;Ma Jinling;Yang Qi;Zhang Chunxu;Zheng Pengfei(School of Nursing,Department of Medicine,Soochow University,Soochow 215006,China;Discipline Supervision Office,Children's Hospital Affiliated to Soochow University,Soochow 215025,China;Hematology Department,Children's Hospital Affiliated to Soochow University,Soochow 215025,China;Department of Intensive Medicine,Children's Hospital Affiliated to Soochow University,Soochow 215025,China)

机构地区：[1]苏州大学医学部护理学院,215006 [2]苏州大学附属儿童医院纪监审办公室,215025 [3]苏州大学附属儿童医院血液科,215025 [4]苏州大学附属儿童医院重症医学科,215025

出　　处：《中国实用护理杂志》2019年第1期47-51,共5页Chinese Journal of Practical Nursing

基　　金：苏州市2012年度科技发展计划项目(SYSD2012170).

摘　　要：目的了解急性白血病患儿主要照顾者的负性情绪。方法采用目的抽样法,对17例急性白血病患儿主要照顾者进行半结构式访谈,并采用Colaizzi现象学研究法整理分析访谈资料。结果归纳出3个主题,即复杂的情绪反应、多方面的担忧、薄弱的支持系统。结论确诊初期的急性白血病患儿主要照顾者有焦虑、恐惧等多种负性情绪,护理人员应对其提供疾病相关的照护技能培训和个性化的心理护理,呼吁建立社会支持系统和网络交流平台,真正满足其需求,减轻照顾负担,以期更好地配合患儿的后续治疗与护理。Objective To understand the negative emotion in primary caregivers of early. diagnosed children with acute leukemia.Methods By purposive sampling,17cases were selected and investigated by semi-structuredinterviews.Colaizzi principles were used to analyze the data.Results Three themes were extracted:complex emotional response,too many concerns and weak support system. Conclusion s The primary caregivers of children with acute leukemia at the early stage of diagnosis have negative emotions such as anxiety and fear,and suffer from psychological and economicpressures.Nurses should provide disease-related nursing skills training and personalized psychological care,and call for the establishment of the social support system and online communication platformto really meet their needs and alleviate the burden of care in order to better meet the follow-up treatment and care of children.

关 键 词：白血病 照顾者 儿童 负性情绪 

分 类 号：R473.73[医药卫生—护理学]