哮喘患儿家属照顾负担的质性研究  

Qualitative study on burden of caregiver of children with asthma

作　　者：高国贞[1] 郭妙兰 郭锦兰[4] 温李滔[3] 李瑾瑛[2] 

机构地区：[1]广州医科大学附属第一医院护理部,510120 [2]广州医科大学附属第一医院儿科门诊,510120 [3]广州医科大学护理学院 [4]广东医学院护理学院

出　　处：《中国实用护理杂志》2015年第13期984-987,共4页Chinese Journal of Practical Nursing

摘　　要：目的 了解哮喘患儿家属的照顾负担,为护理人员制订居家护理支持方案提供依据.方法 采用质性研究,对正在儿科门诊候诊的13名哮喘患儿家属进行半结构式访谈,以Colaizzi 7步分析法分析资料.结果 哮喘患儿家属照顾负担可归纳为4个主题：透支时间和精力、经济负担较重、照护知识缺乏、负性情绪.结论 哮喘患儿家属存在相对较重的照顾负担,对日常工作、生活及自身身心健康产生较大影响,医疗工作者应关注照顾者的负担状况,有针对性地进行护理干预,使其较好地适应照顾者角色,从而维持和促进患儿及其家庭健康.Objective To describe the burden of caregivers of children with asthma,and to provide reference for the development of family care support program.Methods Qualitative research was used to carry out semi-structured interviews with 13 caregivers of children with asthma in the pediatric outpatient of the First Affiliated Hospital of Guangzhou Medical University.The data collected were analyzed with Colaizzi 7-step analysis method.Results The carcgiver burden was classified into 4 themes,including time and energy exhaustion,heavy economic burden,insufficient knowledge of care and negative emotions.Conclusions The burden of caregivers of children with asthma has a relatively great impact on the daily work and life,even the physical and mental health.Care workers should be concerned about the status of caregiver burden and provide targeted interventions,which could help caregiver adapt to their roles,maintain and promote the health of children patients and their families.

关 键 词：儿童 哮喘 照顾者负担 质性研究 

分 类 号：R473.72[医药卫生—护理学]