美英政府开放健康医疗数据的主题分布与开放程度量化研究  

A Quantitative Analysis onthe Topic Distribution and Openness Degree of Health and Medical Data in the Open Government Practice of the US and UK

作　　者：李姣[1] 郭海红[1] 郭珉江[1] 代涛[1] 

机构地区：[1]中国医学科学院医学信息研究所,北京100020

出　　处：《图书情报工作》2015年第20期132-137,共6页Library and Information Service

基　　金：国家卫生与计划生育委员会规划与信息司委托课题"健康医疗大数据应用国际经验研究"研究成果之一

摘　　要：[目的/意义]分析美英政府开放健康医疗数据的主题分布情况与开放程度,为健康医疗行业数据开放提供参考。[方法/过程]围绕美国和英国政府数据开放门户上发布的健康医疗数据的来源机构、主题分布、开放数据认证、开放等级分布等情况进行量化研究。[结果/结论]截至2015年4月,美国data.gov共发布812个健康医疗类数据集,约50%为来自医疗保险与医疗补助服务中心的医疗保险与费用数据;87%的开放数据认证等级为初级;英国data.gov.uk共发布1755个健康医疗类数据集,37%为卫生管理与质量监测数据,35%为人口统计数据,近70%的数据有访问限制。开放政府数据在实践层面尚处于起步阶段,美英政府分级分类开放了部分健康医疗数据,开放数据的主题分布较为集中、开放程度有限,其分级分类的做法有一定的借鉴意义。[ Purpose/significance] This paper investigates the topic distribution and openness degree of health and medical data in the open government practice in the US and UK, and it will provide a reference for open governmental health and medical data practice. [ Method/process ] This paper surveyed the sources of open data, topic distribution, open data certificate and openness degree of the real data published on data. gov and data. gov. uk via quantitativemethods. [ Result/conclusion] Up to April 2015, the data. gov in the US has published 812 health datasets, among which nearly 50% were health insurances and costs data coming from Centers for Medicare and Medicaid Services. 87% of the open da- ta certificates were at the elementary level. The data. gov. uk has published 1 755 health datasets, among which 37% were about administrative＆quality monitoring and measurement, and 35% were about population statistics. About 70% of the datasets were unavailable, or not licensed, or only available to limited users. Open government data is just startingat the practice level, and the US and UK governments have opened some data in health and medical areas. The data topic is dis- tributed in an imbalance manner, and openness degree is under rigorous control by far. The topic classification and open- ness degree of open datasets can providereferencesfor other countries in open governmental health and medical data.

关 键 词：开放数据 开放政府健康 医疗数据 主题分布 开放数据认证开放程度 

分 类 号：R199[医药卫生—卫生事业管理] G353.1[医药卫生—公共卫生与预防医学]