HIV感染父母对子女告知病情影响因素的质性研究  

A qualitative study on factors associated with disclosure of parental HIV infection to children

作　　者：孙美艳[1,2] 张林[1] 张晶[1] 董文静[1] 卢洪洲[1,3] 鲍美娟[1] 

机构地区：[1]复旦大学附属公共卫生临床中心,上海201508 [2]复旦大学护理学院 [3]复旦大学附属华山医院

出　　处：《护理学杂志》2016年第11期22-25,共4页Journal of Nursing Science

基　　金：国家十二五科技重大专项项目(2012ZX09303013)

摘　　要：目的探讨影响HIV感染父母对子女告知病情的影响因素。方法对20例HIV感染父母进行深入访谈,以Colaizzi现象学研究方法分析资料。结果提炼出羞耻感及担心子女受歧视、担心增加子女压力、担心子女的负性反应、不知道如何告知、告知意愿5个主题。结论影响HIV感染父母对子女告知病情的主要原因为自我感知的羞耻感、担心社会歧视及不知如何告知,医护人员应关注该人群的心理社会需求,构建符合我国国情的病情告知干预指南,以减轻HIV感染者病情告知压力与困扰。Objective To investigate the factors associated with disclosure of parental HIV infection to children.Methods An in-depth interview was conducted on 20 parents with HIV infection and data were analyzed by Colaizzi phenomenological analysis method.Results Five barriers to disclosure of parental HIV infection to children were：stigma and worrying about their children suffering discrimination and isolation;fear of increasing children′s stress;concern about children′s negative reactions;unawareness of how to disclose;and willingness of disclosure.Conclusion Barriers to disclosure of parental HIV infection to children were self-perceived stigma,fear of social discrimination,and unawareness of how to disclose.Medical staff should pay attention to psychosocial needs of parents with HIV infection,and construct disclosure guidelines to alleviate their stress of disclosure.

关 键 词：HIV感染者 艾滋病 父母 子女 病情告知 影响因素 质性研究 

分 类 号：R473.5[医药卫生—护理学] R512.91[医药卫生—临床医学]