系统性红斑狼疮患者疾病不确定感影响因素及实施人文关怀策略的研究  

Influencing Factors of UncertaintyinIllness and Implementation of Humanistic Care Strategies in Patients with Systemic Lupus Erythematosus

作　　者：李欣[1] 李娜[1] 刘秀[1] 王盼[1] 陈静[1] 王明旭[2] 

机构地区：[1]西安交通大学第一附属医院风湿免疫科,陕西西安710061 [2]西安交通大学医学部公共卫生学院,陕西西安710061

出　　处：《中国医学伦理学》2017年第2期206-210,共5页Chinese Medical Ethics

摘　　要：目的探讨系统性红斑狼疮(SLE)患者疾病不确定感现状,研究其影响因素及人文关怀策略。方法采用一般情况调查表及疾病不确定感量表进行问卷调查,采用SPSS 18.0统计软件进行数据分析。结果 SLE患者具有较高疾病不确定感,4个维度中不可预测性、不明确性得分较高,信息缺乏、复杂性得分较低,文化程度、家庭经济收入、自我感知疾病严重程度是SLE患者疾病不确定感的主要影响因素(P<0.05)。结论 SLE患者疾病不确定感较高,主要来源于不可预测疾病过程与预后及不明确疾病症状,与文化程度、家庭经济条件及自我感知疾病严重程度相关,临床医护人员应关注SLE患者疾病不确定感,采取积极的人文关怀护理措施,降低患者疾病不确定感。Objective： To investigate the uncertainty in illness of patients with systemic lupus erythematosus （SLE） and to explore the influencing factors and humanistic care strategies. Methods： The general situation ques- tionnaire and the uncertainty in illness scale were used to investigate the influencing factors of uncertainty in illness and positive humanistic care strategies in patients with SLE. Results： Patients with SLE were at a high level of un- certainty in illness, of which the unpredictability and uncertainty scored higher but lack of information and complex- ity were of lower scores. Educational status, family income, and self - perceived severity of disease were the main influencing factors of uncertainty in illness （P 〈 0.05 ）. Conclusion ： Patients with SLE were at a high level of un- certainty in illness, mainly from the unpredictable progress of disease and prognosis and unclear symptoms of the disease. Educational status, family income, and self - perceived severity of disease were the main influencing fac- tors of uncertainty in illness. The clinical staff should pay attention to uncertainty in illness among patients with SLE and adopt positive humanistic care measures so as to reduce the sense of uncertainty in illness.

关 键 词：系统性红斑狼疮 疾病不确定感 人文关怀 

分 类 号：R593.24[医药卫生—内科学]