多维社会支持对重症肌无力行胸腔镜手术患者术后生存质量影响的质性研究  

Effect of multidimensional social support on quality life for the myasthenia gravis patients with VATS: A qualitative study

作　　者：常淑文 夏燕 孙凯旋 严谨 叶敬霆 张轶[2] 束余声[2] CHANG Shuwen XIA Yan SUN Kaixuan YAN din YE Jingting ZHANG Yi SHU Yusheng(School of Nursing of Yangzhou University, Yangzhou, Jiangsu, 5001 Medical College of Yangzhou University, Yangzhou, Jiangsu, 225001 Northern People＇s Hospital, Yangzhou, Jiangsu, 225001)

机构地区：[1]扬州大学护理学院,江苏扬州225001 [2]江苏省苏北人民医院,江苏扬州225001 [3]扬州大学医学院,江苏扬州225001

出　　处：《实用临床医药杂志》2017年第8期82-85,共4页Journal of Clinical Medicine in Practice

基　　金：江苏省卫生厅指导性科研课题(Z201314)

摘　　要：目的通过对重症肌无力行胸腔镜胸腺切除术患者的质性研究,探讨社会支持系统对患者术后生存质量和心理状态的影响。方法通过采用个人访谈法,深度访问某三甲医院心胸外科住院的12名重症肌无力患者,得到主题问题并制定解决方案。结果通过质性研究得到4个方面的主题:患者的压力与痛苦;治疗和生活中遇到的困难;社会支持对于患者帮助;患者的适应和改变。结论重症肌无力患者的生活质量普遍低于健康人群,全身型病情较重者术后生活质量更差;增加患者的多维度社会支持,特别是家人和同伴支持是影响患者的术后生活质量的关键因素。Objective To explore the influence of multidimensional social support system on quality of life and psychological state for myasthenia gravis patients underwent VATS. Methods Phenomenologieal research design and in-depth interviews were conducted for 12 patients with myasthenia gravis in cardiothoracic surgery department in our hospital. And countermeasures were implemented. Results There were four themes drew from MG including the pressure and pains of patients, the difficulties in treatment period and daily life, social support was a great help for patients, adapting and adjusting to MG. Conclusion The quality of life for MG patients is generally lower than healthy people, and the generalized is worse than the ocular after VATS. Increasing the multi-dimensions social support, especially family and peer support is the key factor for the patient＇s postoperative quality of life.

关 键 词：重症肌无力 多维社会支持 胸腔镜手术 质性研究 

分 类 号：R473.6[医药卫生—护理学]