先天性心脏病术后患儿生活质量的研究现状  

Research status of life quality of children after congenital heart disease surgery

作　　者：吴佳莹[1] 陈京立[1] WU Jia-ying CHEN Jing-li(Nursing School, Peking Union Medical College, Belling 100144, China)

机构地区：[1]北京协和医学院护理学院,北京100144

出　　处：《中国妇幼健康研究》2017年第5期609-611,共3页Chinese Journal of Woman and Child Health Research

摘　　要：先天性心脏病(简称先心病)的发病率近年来居高不下,成为婴幼儿死亡及致残的主要原因。外科手术和介入手术治疗的发展,使至少85%的先心病患儿存活到成年期,越来越多的先天性心脏病患儿被治愈或带病生存至终身。随着人们对健康观念的转变,生活质量即患儿对其目前生命状况的认知和满意程度,已逐渐成为评估儿童身心健康的重要指标。因此关注先心病术后患儿的生活质量对患儿术后恢复健康具有重要意义。目前我国对先心病术后患儿生活质量现状缺乏长期随访观察,使得研究结果不够深入和全面。该文主要阐述了先心病术后患儿生活质量的研究现状,按照WHO生活质量研究组提出的生理功能、外表、心理功能、家庭社会关系、心理社会状况和生活环境这6个方面来阐述,为后期改善先心病术后患儿生活质量提供依据。The incidence of congenital heart disease （CHD） is high in recent years, and it becomes the main cause of death and disability in infants.With the development of surgery and interventional surgery, at least 85% CHD children survive till adulthood, and a growing number of children with CHD are cured or lived to life.With the change of people＇s concept of health, quality of life （children＇s awareness of their current life status and satisfaction） has gradually become an important indicator to assess children＇s physical and mental health.So paying attention to the quality of life of children with CHD is of great importance to postoperative recovery.Long-term follow-up observation on life quality of children with CHD is scarce in our country, which results in simple research results.This article mainly expounded research status of quality of life of postoperative children with CHD according to 6 aspects proposed by WHO quality of life research group, physiological function, appearance, psychological function, family-social relation, psychosocial status and living environment, so as to provide basis for improving the quality of life in children with CHD in future.

关 键 词：先心病术后 儿童 生活质量 研究现状 

分 类 号：R725.4[医药卫生—儿科]