家族性高胆固醇血症患者疾病认知与自我管理调查分析  

Questionnaire of illness perception and self-management in familial hypercholesterolemia

作　　者：彭洁[1] 吴雪[1] 王世龙 洪靖[2] 蔺洁[1] PENG Jie;WU Xue;WANG Shilong;HONG Jing;LIN Jie(Department of Atherosclerosis, Beijing Anzhen Hospital, Capital Medical University,Beijing Institute of Heart,Lung and Blood Vessel Disease, Beijing 100029, China)

机构地区：[1]首都医科大学附属北京安贞医院北京市心肺疾病研究所动脉硬化研究室,100029 [2]中日友好医院内分泌代谢科

出　　处：《心肺血管病杂志》2018年第4期320-324,共5页Journal of Cardiovascular and Pulmonary Diseases

基　　金：国家自然科学基金项目(81370443;81170793);家族性高胆固醇血症十国研究(IAS10839501)

摘　　要：目的:基于疾病认知和行为认知理论,调查家族性高胆固醇血症(FH)患者疾病认知与行为认知(体育锻炼和健康饮食)现状、预测患者的自我管理意向。方法:采用疾病认知问卷和计划行为量表对120例FH患者进行调查。采用SPSS 23.0、AMOS23.0统计分析及建构模型。结果:患者自评动脉粥样硬化、冠心病和高血压患病率分别为23.6%、52%和22.8%;31.5%的患者接受他汀治疗;结构方程模型拟合良好,体育锻炼方面,疾病认知对意图的路径系数为0.30,态度、个人控制和自我效能对FH患者意图路径系数分别为0.11、-0.25、-0.40;健康饮食方面,主观规范、态度和个人控制对意向路径系数分别为0.52、0.37和-0.25。结论:FH患者对疾病认知、体育锻炼、健康饮食的认知不足,强调疾病知识、端正患者态度、增强信心和个人控制力可提高FH患者体育锻炼意图,且疾病认知对自我管理影响显著,有必要对其强化健康教育。Objective： Patients with familial hypercholesterolemia（ FH） patients are at extremely elevated risk for ASCVD. Effective management in three self-management behaviors,physical activity,healthy diet and adherence to medication,can significantly reduce the risk. Our research aims at investigating the illness perceptions and predicting the self-management intentions of FH patients byusingamulti-theory,integrated model. Methods： 120 FH were investigatedin this study. Patients were asked to independently fill out the Illness Perception Questionnaire（ IPQ-R） and theory of planned behavior questionnaire. Using structural equation modeling（ SEM） to analysis. SPSS 23. 0 and AMOS23. 0 statisticalanalysis software was used. Results： Patient self-rated prevalence of the rosclerosis,coronary heart disease and hypertension were 23. 6%,52%and22. 8%; 31. 5% of patients received statin therapy. The SEM was well fitted,physical exercise,disease cognition personal control,self-efficacy on FH patients with intentional path coefficients were 0. 11,-0. 25,-0. 40; healthy diet,subjective norms,attitudes and personal control to the intentional path coefficients were0. 37,0. 52 and-0. 25 respectively. Conclusion： The disease awareness of patients has a significant impact on self-management,itis necessary for FH patients with health education. Emphasize disease knowledge,enhance confidence,personal control can help patients improvetheir physical exercise will.

关 键 词：家族性高胆固醇血症 疾病认知 计划行为理论 自我管理 

分 类 号：R54[医药卫生—心血管疾病]