重症肌无力患者希望水平、应对方式和生活质量的相关性研究  

Correlations among hope level, coping style and life quality in myasthenia gravis patients

作　　者：王朝军[1] 相松飞[1] 罗国英[1] 陈秀芳[1] Wang Chaojun;Xiang Songfei;Luo Guoying;Chen Xiufang(Neurology Department, Shaoxing People＇s Hospital of Zhejiang Province, Shaoxing 312000, China)

机构地区：[1]浙江省绍兴市人民医院神经内科,312000

出　　处：《中华现代护理杂志》2018年第13期1522-1527,共6页Chinese Journal of Modern Nursing

摘　　要：目的 探讨重症肌无力（myasthenia gravis,MG）患者希望水平、应对方式与生活质量的关系.方法 采用便利抽样法,选取2016年9月—2017年9月在绍兴市人民医院治疗的MG患者139例,应用Herth希望量表（HHI）、医学应对问卷（MCMQ）、生活质量核心问卷（QLQ-C30）调查患者的希望水平、应对方式以及生活质量.采用Perason相关和多元线性回归分析三者之间的相关性及生活质量的影响因素.结果 MG患者希望量表总分为（35.85±3.14）分,医学应对问卷面对维度得分为（18.78±3.67）分,回避维度得分为（15.82±2.37）分,屈服维度得分为（9.94±2.79）分,总体生活质量得分（52.33±11.83）分.相关分析显示,MG患者希望量表总分与总体生活质量呈正相关（r=0.675,P〈0.05）,面对的应对方式与总体生活质量呈正相关（r=0.613,P〈0.05）,屈服的应对方式与总体生活质量呈负相关（r=-0.582, P〈0.05）.多元线性回归分析显示,医疗费用负担、MGFA分型、希望量表总分、屈服是影响MG患者生活质量的因素.结论 MG患者生活质量不高,医疗费用负担、MGFA分型、希望水平及屈服的应对方式是影响患者生活质量的主要因素.Objective To explore the relationships among hope level, coping style and quality of life （QOL） in myasthenia gravis （MG） patients. Methods From September 2016 to September 2017, 139 MG patients of Shaoxing People＇s Hospital were selected by convenience sampling. The hope level, coping style and QOL of patients were investigated with the Herth Hope Index （HHI）, Medical Coping Modes Questionnaire （MCMQ） and Quality of Life Questionnaire-Core 30 （QLQ-C30）. Pearson correlation and multiple linear regression were used to analyze the correlations among them and influencing factors of QOL respectively. Results The total score of HHI, score of confrontation dimension, avoidance dimension, yield dimension of MCMQ and score of total QOL of MG patients was （35.85±3.14）, （18.78±3.67）, （15.82±2.37）, （9.94±2.79） and （52.33±11.83） respectively. Correlation analysis showed the total score of HHI of MG patients was positively associated with the total score of total QOL （r=0.675, P〈0.05）; the confrontation coping style was positively associated with the total QOL （r=0.613, P〈0.05）; the yield coping style had a negative correlation with the total QOL （r=-0.582, P〈0.05）. Multiple linear regression analysis revealed the influencing factors of QOL of MG patients included the burden of medical expense, classification of Myasthenia Gravis Foundation of America （MGFA）, total score of HHI and yield. Conclusions The QOL of MG patients is in a low level. The main influencing factors of QOL of patients involve the burden of medical expense, classification of MGFA, hope level and yield coping style.

关 键 词：重症肌无力 生活质量 希望水平 应对方式 

分 类 号：R473.74[医药卫生—护理学]