急性白血病患儿照顾者疾病获益感的现象学研究  

Phenomenological study on benefit finding of caregivers of children with acute leukemia

作　　者：吴亚美 张春梅[2] 郑小芬 叶欢瑶 应金宏 杨汉喜 林海玉[4] WU Yamei;ZHANG Chunmei;ZHENG Xiaofen;YE Huanyao;YING Jinhong;YANG Hanxi;LIN Haiyu

机构地区：[1]温州医科大学第二临床医学院,温州市325000 [2]温州医科大学附属第二医院育英儿童医院护理部 [3]温州医科大学附属第二医院育英儿童医院儿童血液科 [4]温州医科大学附属第二医院育英儿童医院肿瘤放疗科

出　　处：《中华护理杂志》2018年第6期674-678,共5页Chinese Journal of Nursing

基　　金：浙江省医药卫生科技计划(2014KYA146);浙江省一流学科(B类)护理学(浙政办函[2016]6号)

摘　　要：目的探讨急性白血病患儿照顾者疾病获益感,为临床护理提供新思路。方法采用现象学研究方法 ,对15名急性白血病患儿照顾者进行访谈。结果急性白血病患儿照顾者存在疾病获益感,并可归纳为4个主题:人生哲学的改变(领悟生命的意义、学会接受现实、珍惜当下、坚定信念和希望);个人能力提升(主动学习能力提升、照护能力提升、自我调控能力提升);感知多方支持(感知家人的支持、感知同伴及医护人员的支持);健康相关认知行为的改善。结论急性白血病患儿照顾者能够从孩子的患病经历中体验到疾病获益感。医护人员应了解急性白血病患儿照顾者疾病获益感,以促进照顾者早期发现疾病获益感,并对其进行针对性的指导。Objective To investigate the benefit finding of caregivers caring for children with acute leukemia. Methods Phenomenological method was used in this study. In-depth interviews were conducted with 15 caregivers of children with acute leukemia. Results Caregivers had benefit finding which could be mainly classified into 4 themes：changes in philosophy of life（understand the meaning of life,learn to accept the reality,cherish the present, a firm belief and hope）;improvement of personal ability（active learning ability promotion,caring ability promotion, self-regulation ability promotion）;perception of various supports（sense of family support,professional support and peer support） ;improvement on heahh-related cognition and behavior. Conclusion Caregivers of children with acute leukemia can experience benefit finding from the experience of care giving. Health care workers should be aware of the benefit finding of caregivers in order to promote early detection and appropriate guidance of benefit finding.

关 键 词：急性白血病 照顾者 疾病获益感 护理 定性研究 

分 类 号：R473.73[医药卫生—护理学]