肝癌合并乙型病毒性肝炎患者照顾者心理体验的质性研究  

Qualitative research of the psychological experience of the main caregivers of hepatocellular carcinoma with hepatitis B virus

作　　者：李彩云 张伟 毕新宇 王黎明 和芳 厉遥远 Li Caiyun;Zhang Wei;Bi Xinyu;Wang Liming;He Fang;Li Yaoyuan(Department of Hepatobiliary Surgery,National Cancer Center/National Clinical Research Center for Cancer/Cancer Hospital,Chincse Academy of Medical Sciences and Peking Union Medical College,Beijing 100021,China)

机构地区：[1]国家癌症中心国家肿瘤临床医学研究中心中国医学科学院北京协和医学院肿瘤医院肝胆外科,100021

出　　处：《中国实用护理杂志》2018年第21期1642-1646,共5页Chinese Journal of Practical Nursing

摘　　要：目的探讨肝癌合并乙型病毒性肝炎（乙肝）照顾者的心理体验。方法2016年10月至2017年3月对中国医学科学院肿瘤医院肝胆外科的12例肝癌合并乙肝患者的照顾者进行半结构式访谈，根据Colaizzi7步分析法对原始资料进行整理分析。结果共提炼出5个主题：知晓诊断时应激反应舒缓、亏欠与自责、对可能失去亲人的恐惧和悲伤、压力性焦虑（经济压力、角色功能丧失的压力、担心被传染的压力）、连带病耻感。结论肝癌合并乙肝患者照顾者在照护过程中多种体验并存。根据照顾者的心理体验和需求，探索并提供有效的护理支持，是提高其身心健康和对患者的照顾质量的途径之一。bjective To explore the psychological experience of the caregivers of Hepatocellular Carcinoma with Hepatitis B virus. Methods Semi-structured Interviews were performed in a total of 12 main caregivers of Hepatocellular Carcinoma with Hepatitis B in the Chinese Academy of Medical Sciences from October 2016 to March 2017, and the original data was analyzed according to the Colaizzi 7- step method. Results A total of five topics were extracted, including Awareness of relief stress when the diagnosis was informed, Indebtedness and self-blame, fear and sadness of possible loss of loved ones, stressful anxiety （stress of economy, loss of function, worrying about being infected）, and joint stigma. Conclusions Many psychological experiences of main caregivers of patients with hepatocellular carcinoma combined with hepatitis B coexist in the course of care. Exploring and providing effective care support based on the psychological experience and needs of caregivers is one way to improve physical and mental health and the quality of care for patients.

关 键 词：肝肿瘤 乙型病毒性肝炎 照顾者 心理体验 定性研究 

分 类 号：R473.73[医药卫生—护理学]