肝硬化失代偿期患者主要照顾者对延续性护理需求的质性研究  

The Qualitative Study of Continuity Care Needs of the Family Caregivers of the Patients with Decompensated Liver Cirrhosis

作　　者：李倩倩 牛小霞[1] 徐碧海 马艳琳[1] 王乔敏[1] Li Qianqian;Niu Xiaoxia;Xu Bihai;Ma Yanlin;Wang Qiaomin(Live Cirrhosis Center II,302 Military Hospital of China,Beijing 100039,China)

机构地区：[1]解放军第302医院肝硬化诊疗二中心,北京100039

出　　处：《解放军护理杂志》2018年第1期25-28,共4页Nursing Journal of Chinese People's Liberation Army

摘　　要：目的了解肝硬化失代偿期患者的主要照顾者对延续性护理的需求体验。方法运用现象学研究法,对15名肝硬化失代偿期患者的主要照顾者进行半结构式访谈,并采用Colaizzi现象学7步分析法对资料进行分析,并提炼主题。结果肝硬化失代偿期患者的主要照顾者对延续性护理需求可归纳为4个主题,包括疾病产生及发展知识需求、生活护理指导需求、减轻家庭经济负担的需求和心理指导需求。结论肝硬化失代偿期患者出院后仍有护理服务需求,其主要照顾者的负担比较重,亟须完善医院-社区-家庭护理模式,采取个性化的护理服务,有针对性地指导主要照顾者积极应对,提高主要照顾者及患者的生活质量。Objective To understand the continuity care needs of the family caregivers of the patients with cirrhosis during liver decompensation period.Methods By using phenomenological analysis of qualitative study,15 main caregivers of patients with cirrhosis during liver decompensation period had semi-structured interviews,and the Colaizzi phenomenological analysis method was used for data collection and analysis,and the themes were extracted.Results Four themes were extracted:needs of disease knowledge,instruction needs of daily nursing skills,medical expense demand,and psychological needs.Conclusion Patients with cirrhosis during liver decompensation period still require nursing care after discharge,and family caregivers are under heavy burden.The hospital-community-family nursing mode needs to be improved,with individualized nursing care,and targeted guidance to caregivers for active coping,to enhance the quality of life of both main caregivers and patients.

关 键 词：延续性护理 肝硬化失代偿期 主要照顾者 需求 

分 类 号：R197.323[医药卫生—卫生事业管理]