慢性病患儿及家庭延续护理需求现状及分析  

Demands of Transitional Care for Children with Chronic Diseases and Their Families

作　　者：李双子[1] 张萍[2] 罗业涛 刘玉琳[4] 胡丽君[5] LI Shuangzi;ZHANG Ping;LUO Yetao;LIU Yuling;HU Lijun(Neurology Department,Children’s Hospital of Chongqing Medical University,Chongqin 400014,China;Medical Price Department,Children’s Hospital of Chongqing Medical University;.Biostastic Department,Chongqing Medical University School of Public Health and Management;Respiratory Department,Children’s Hospital of Chongqing Medical University;Gastrointestinal Surgery Department,Children’s Hospital of Chongqing Medical University)

机构地区：[1]重庆医科大学附属儿童医院神经内科,重庆400014 [2]重庆医科大学附属儿童医院物价科 [3]重庆医科大学公共卫生与管理学院卫生统计与信息管理教研室 [4]重庆医科大学附属儿童医院呼吸科 [5]重庆医科大学附属儿童医院胃肠外科

出　　处：《解放军护理杂志》2018年第24期46-50,共5页Nursing Journal of Chinese People's Liberation Army

基　　金：重庆市渝中区科委面上项目(20180166)

摘　　要：目的了解慢性病患儿及家庭对延续护理的需求情况,为制定适宜的延续护理服务模式提供参考。方法 2017年5-10月,便利抽样法选取在重庆市某儿童医院住院的500例慢性病患儿及主要照顾者为研究对象,采用自行设计的问卷对其进行延续护理的需求调查。结果慢性病患儿主要照顾者认为理想的延续护理服务方式为儿童医院"互联网+"APP(86.0%)、QQ或微信群服务(55.0%);最理想的延续服务提供者为曾住院医院的主管医生(85.2%)、主管护士(51.8%)、专门的随访团队(51.6%);97.8%的主要照顾者选择工作3年以上的医护人员为其提供延续服务;在服务频次上,大多数照顾者期待出院后1个月内每周接受1次(53.8%),出院1个月后每月接受1次(57.2%);最需要接受的专业延续服务内容依次为病情观察(75.0%)、用药指导(74.0%)、饮食营养指导(59.6%)和急救处理(52.4%)等;最需要现场面对面提供的延续服务为专科查体(58.2%)和康复训练(46.6%)。结论慢性病患儿及家庭延续护理需求内容具体而丰富,在未来的延续护理服务中应综合考虑这些因素,开展与需求相匹配、符合时代发展的延续护理服务,以促进慢性病患儿全面康复。Objective To investigate the demands of transitional care for children with chronic disease and their families,in order to provide reference for formulating appropriate transitional care modes.Methods Using self-designed questionnaires and investigating the demands for 500 main caregivers of children with chronic diseases who were hospitalized in a children’s hospital in Chongqing from May to October in 2017.Results For transitional care,the most expected ways by the children’s main caregivers were as follows:‘Internet+’APP from children’s hospital(86.8%),QQ or WeChat group communication(55.0%).The most expected service providers were as follows:charge doctors(85.2%),charge nurses(51.8%)and special follow-up team(51.6%)from hospitals which used to be hospitalized.The most popular doctors or nurses who provided transitional nursing had worked for more than 3 years(97.8%).The most interested transitional care frequency was once a week(53.8%)during one month after discharged,and once a month(57.2%)after one month.The most service content demands were as follows:disease observation(75.0%),medication guidance(74.0%),diet and nutrition guidance(59.6%),emergency treatment(52.4%)and so on.The most face-to-face service demands was professional examination body(58.2%)and rehabilitation training guidance(46.6%).Conclusions The demands required by children with chronic diseases and their families for transitional care are specific and abundant.In the future,these factors should be taken into account.Transitional care should be based on the specific needs of children and their main caregivers to promote rehabilitation of children with chronic diseases.

关 键 词：慢性病 患儿 延续护理 需求 现状 

分 类 号：R473.72[医药卫生—护理学]