先天性心脏病患儿母亲感知脆弱与亲职压力的相关性研究  

Correlation between perceived vulnerability and parenting stress in mothers of children with congenital heart disease

作　　者：杨淑琴[1] 邹鑫蓓 夏阿丽 潘国权[1] Yang Shuqin;Zou Xingbei;Xia A’li;Pan Guoquan(Pediatric Intensive Care Unit, the 2nd Affiliated Hospital of Wenzhou Medical University, Wenzhou 325000, China;Department of Pediatric Cardiovascular Medicine, the 2nd Affiliated Hospital of Wenzhou Medical University, Wenzhou 325000, China)

机构地区：[1]温州医科大学附属第二医院PICU,温州325000 [2]温州医科大学附属第二医院儿童心血管内科,温州325000

出　　处：《中华现代护理杂志》2019年第26期3356-3359,共4页Chinese Journal of Modern Nursing

基　　金：浙江省医药卫生科技计划项目(2017KY478).

摘　　要：目的调查先天性心脏病(CHD)患儿母亲感知脆弱程度与亲职压力的现状,分析二者的相关性。方法采取便利抽样法,选取2017年9月—2018年9月于浙江省3所三甲医院就诊的176名CHD患儿母亲作为研究对象,采用一般情况调查表、父母感知脆弱程度量表(CVS)、亲职压力简表(PSI-SF)进行问卷调查。结果共发放176份问卷,回收176份,其中有效问卷168份,问卷有效率95.45%。患儿168名CHD母亲CVS得分为(8.77±3.59)分,PSI-SF得分为(100.74±10.55)分。单因素分析结果显示,CHD患儿母亲不同受教育程度、患儿是否为独生子女的PSI-SF得分差异有统计学意义(P<0.05);CVS总分与PSI-SF总分及各维度得分呈正相关(r=0.262~0.569,P<0.05);受教育程度、患儿是否为独生子女、CVS总得分是亲职压力的影响因素,除一般资料的影响,CVS总得分能够解释总变异的17%。结论感知脆弱程度与亲职压力呈正相关,医护工作者可通过降低其感知脆弱水平,改善亲职压力,从而为CHD患儿提供更好的家庭护理。Objective To explore the current perceived vulnerability and parenting stress (PS) in mothers of children with congenital heart disease (CHD) and to analyze the correlation between the two. Methods The mothers of 176 children with congenital heart disease admitted in the 2nd Affiliated Hospital and Yuying Children's Hospital of Wenzhou Medical University from September 2017 to September 2018 were selected using convenient sampling and investigated with the General Information Questionnaire, Child Vulnerability Scale (CVS) and Parenting Stress Index-Short Form (PSI-SF). Results Totally 176 questionnaires were distributed and collected, including 168 valid questionnaires, accounting for a recovery rate of 95.45%. The CVS score of the mothers of CHD children averaged (8.77±3.59);their PSI-SF scores saveraged (100.74±10.55);there was statistically significant difference in PSI-SF scores between mothers with different educational background and single child or not (P<0.05);the total CVS score was positively correlated with the total PSI-SF score and the scores of its various dimensions (r=0.262-0.569);multivariate stepwise regression analysis showed that mothers with different educational background, single child, and the total score of CVS were factors of parenting stress, except the effect of general information, the total score of CVS can explain 17% of the total variation. Conclusions The perceived vulnerability and PS of the mothers of CHD children stand at high levels. Their perceived vulnerability is positively correlated with their PS. Medical and nursing workers may improve their PS by reducing their perceived vulnerability, thus providing better family care for CHD children.

关 键 词：心脏缺损 先天性 母亲 感知脆弱 亲职压力 

分 类 号：R473.72[医药卫生—护理学]