中国掌跖角皮症患者问卷调查分析  

Questionnaire survey of Chinese patients with palmoplantar keratoderma

作　　者：洪佳琦 唐利利[1] 洪小洁 朱婷婷 袁涛 梁波[1] 高敏[1] 张学军[1] HONG Jiaqi;TANG Lili;HONG Xiaojie;ZHU Tingting;YUAN Tao;LIANG Bo;GAO Min;ZHANG Xuejun(Dermatology and Venereology Department,The First Affiliated Hospital of Anhui Medical University,Hefei,230022,China)

机构地区：[1]安徽医科大学第一附属医院皮肤性病科

出　　处：《中国麻风皮肤病杂志》2019年第10期587-590,共4页China Journal of Leprosy and Skin Diseases

摘　　要：目的:调查中国掌跖角皮症患者的临床特征、伴发疾病以及患者对自身疾病的认知水平。方法:通过网络调查问卷的形式,对全国各地掌跖角皮症患者进行问卷调查。结果:共发放和回收调查问卷361份,有效问卷346份。在346例掌跖角皮症患者中,154例(44.51%)患者有家族史,150例(43.35%)患者皮损类型为弥漫性;287例(82.95%)患者皮损的自觉症状为干燥;258例(74.57%)患者病情严重程度受季节影响;157例(45.38%)患者伴发多汗症;293例(84.68%)患者表现出不同程度的心理负担;300例(86.71%)患者倾向于选择外用药物进行治疗。结论:本研究中掌跖角皮病患者的皮损类型以泛发性为主,自觉症状主要为干燥,病情易受季节影响,患者常有心理负担,更愿意选择外用药治疗。Objective:To investigate the clinical characteristics,concomitant diseases and the cognition level of the Chinese patients with palmoplantar keratoderma.Methods:The survey was conducted among the patients all over the country through a web-based questionnaire.Results:The issuance and recovery of questionnaires were 361 and the valid questionnaires were 346.Of 346 patients,154(44.51%)patients had family history,and the type of diffuse palmoplantar keratoderma was in 150 patients(43.35%),dryness sensation in 287(82.95%),the severity changing with season in 258(74.57%),and hyperhidrosis as the accompanying disease in 157(45.38%).Of 346 patients,293(84.68%)suffered from different degrees of psychological burden and 300(86.71%)tended to choose external drugs for treatment.Conclusion:The type of lesions is generalized and the main subjective symptom is dryness.The severity susceptible to season in majority of the patients.Many patients have psychological burden and prefer to choose external drugs for treatment.

关 键 词：掌跖角皮症 问卷调查 

分 类 号：R47[医药卫生—护理学]