肾病综合征患儿心理弹性与家庭管理方式的相关性分析  

Correlation between resilience and family management mode in nephrotic syndrome children

作　　者：刘丽丽[1] 张佳丽[2] 李秀彦[2] 王旭梅[1] Liu Lili;Zhang Jiali;Li Xiuyan;Wang Xumei(Nurisng Department,National Center for Children's Health,Beijing Children's Hospital,Capital Medical University,Beijing 100045,China;Department of Nephrology,National Center for Children's Health,Beijing Children's Hospital,Capital Medical University,Beijing 100045,China)

机构地区：[1]国家儿童医学中心,首都医科大学附属北京儿童医院护理部,100045 [2]国家儿童医学中心,首都医科大学附属北京儿童医院肾脏病科,100045

出　　处：《中华现代护理杂志》2019年第34期4445-4449,共5页Chinese Journal of Modern Nursing

基　　金：首都护理学研究专项基金(14HL10)。

摘　　要：目的了解青少年肾病综合征患儿家庭管理与心理弹性现状,探索家庭管理对青少年肾病综合征患儿心理弹性的影响关系,为做好慢病患儿的家庭管理及环境支持提供借鉴依据。方法采用便利抽样的方法,选取某三级甲等综合性儿童专科医院2017年4月—2018年4月住院的130例肾病综合征患儿及主要照顾者为调查对象,采用一般情况调查表、家庭管理量表及慢性病儿童韧性量表进行调查。本研究共发放130份问卷,有效回收127份,有效回收率为97.69%。结果127例肾病综合征患儿心理弹性总得分为(99.84±12.53)分,其中高等心理弹性水平患儿15例,占11.81%,中等心理弹性水平患儿102例,占80.31%,低等心理弹性水平10例,占7.87%;患儿家庭管理总得分为(179.16±12.92)分。结果显示,患儿日常生活状态维度得分与患儿心理弹性总分呈正相关(P<0.05),家长对疾病的担心程度、疾病管理困难维度得分与患儿应对方式维度得分呈负相关(P<0.05),家长管理能力维度得分与患儿应对方式维度得分呈正相关(P<0.05),疾病精力消耗与患儿人际关系维度得分呈负相关(P<0.05),父母互相支持维度与患儿的个性特征维度得分、患儿感知的家庭影响维度得分呈正相关(P<0.05)。结论青少年肾病综合征患儿心理弹性及家庭管理水平有待提升,护理人员应关注影响患儿家庭支持及环境对患儿心理因素的影响,并积极引导患儿提升应对能力,引导家属对患儿学校功能、人际关系及家庭环境的积极感知,从而有效提升患儿心理健康水平。Objective To understand the family management and resilience in nephrotic syndrome children to explore the influence of family management on resilience so as to provide a reference for family management and environmental support for chronic disease children.Methods From April 2017 to April 2018,we selected 130 nephrotic syndrome children and main caregivers at a Class Ⅲ Grade A comprehensive children's hospital as subjects by convenience sampling.The investigation was carried out with the general information questionnaire,Chronic Illness Children's Resilience Scale(CICRS)and Family Management measure(FaMM).A total of 130 questionnaires were sent out and 127 valid questionnaires were collected with 97.69%for the valid recovery rate.Results Among those 127 nephrotic syndrome children,the total score of resilience was(99.84±12.53).There were 15(11.81%)children with the high level of resilience,102(80.31%)children with medium level and 10(7.87%)children with the low level.Results showed that the score of child daily life had a positive correlation with the total score of children's resilience(P<0.05);scores of family members'fears of disease and difficulty of disease management had negative correlations with the score of children's coping style(P<0.05);score of family members'management ability had a positive correlation with the score of children's coping style(P<0.05);score of disease burn out was negatively correlated with the score of interpersonal relation(P<0.05);score of supporting each other of parents were positively correlated with the scores of children's individual characteristics and children's perceived family influence(P<0.05).Conclusions Resilience and family management of nephrotic syndrome children need to be improved.Nurses should pay attention to the influence of family support and environmental support on psychological factors in children,and guide children to improve their coping capacity and family members to positively perceive children's school function,interpersonal relation and family en

关 键 词：肾病综合征 弹性 心理 家庭管理 相关分析 

分 类 号：R72[医药卫生—儿科]