强直性脊柱炎/脊柱关节炎患者实践指南  

Practice guideline for patients with ankylosing spondylitis/spondyloarthritis

作　　者：谢雅 杨克虎 吕青 郑毅[3] 黄慈波[4] 李振彬[5] 刘升云[6] 方霖楷 王小琴 周宇麒 梁碧玲[8] 查振刚[9] 江波 周颉 Yankov Zhivko 古洁若 Xie Ya;Yang Kehu;Lyu Qing;Zheng Yi;Huang Cibo;Li Zhenbin;Liu Shengyun;Fang Linkai;Wang Xiaoqin;Zhou Yuqi;Liang Biling;Zha Zhengang;Jiang Bo;Zhou Jie;Yankov Zhivko;Gu Jieruo(Guangdong Provincial Clinical Research Center for Immunological Diseases,Guangzhou 510630,China;ting Centre for Guideline Implementation and Knowledge Translation/Evidence Based Medicine Center,Lanzhou University,Lanzhou 730000,China;Department of Rheumatology and Immunology,Beijing Chaoyang Hospital of Capital Medical University,Beijing 100020,China;Department of Rheumatology and Immunology,Beijing Hospital,Beijing 100010,China;Department of Rheumatology and Immunology,Bethune International Peace Hospital,Shijiazhuang 050051,China;Department of Rheumatology and Immunology,First Affiliated Hospital of Zhengzhou University,Zhengzhou 450052,China;Medical Ethics Committee,Clinical Research Center,Third Affiliated Hospital of Sun Yat-Sen University,Guangzhou 510630,China;Department of Radiology,Second Affiliated Hospital of Sun Yat-Sen University,Guangzhou 510030,China;Department of Orthopedics,First Affiliated Hospital of Jinan University,Guangzhou 510632,China;Spondyloarthritis/Ankylosing Spondylitis Patient Organisation,Guangzhou 510630,China;Ankylosing Spondylitis International Federation,London WC1N 3AX,United Kingdom)

机构地区：[1]广东省免疫疾病临床医学研究中心,广州510630 [2]世界卫生组织指南实施与知识转化合作中心/兰州大学循证医学中心/GRADE中国中心,兰州730000 [3]首都医科大学附属北京朝阳医院风湿免疫科,100020 [4]北京医院风湿免疫科,100010 [5]白求恩国际和平医院风湿免疫科,石家庄050051 [6]郑州大学第一附属医院风湿免疫科,450052 [7]中山大学附属第三医院临床研究中心医学伦理委员会,广州510630 [8]中山大学附属第二医院放射科,广州510030 [9]暨南大学附属第一医院骨科,广州510632 [10]强直性脊柱炎/脊柱关节炎病友会,广州510630 [11]强直性脊柱炎国际联盟机构(ASIF),伦敦WC1N 3AX

出　　处：《中华内科杂志》2020年第7期511-518,共8页Chinese Journal of Internal Medicine

摘　　要：近年来,强直性脊柱炎(AS)/脊柱关节炎(SpA)临床专家共识或指南不断更新,但如何更好地理解与执行,患者自我参与管理是提高诊疗水平的关键环节之一。通过成立多学科专家和患者共同参与的AS/SpA患者实践指南工作组,开展AS/SpA病友会患者与专家共同参与的AS/SpA患者关注问题的调查,筛选出问题,采用《世界卫生组织指南制订手册》相关原则,按照国际规范流程,提出AS/SpA患者实践指南意见15条。In recent years,the clinical experts consensuses or guidelines of ankylosing spondylitis(AS)/spondyloarthritis(SpA)have been constantly updated,but to better understand and practice,patient self-participation management is one of the key points to improve the level of diagnosis and treatment.Through questionnaire survey of these patients,we screened out the most concerned issues,and established the AS/SpA patient practice guideline working group with multidisciplinary physicians and patients.Fifteen opinions,as the AS/SpA patient practice guidelines,are proposed in accordance with the relevant principles of the"WHO guidelines development manual",and with the international normative process.

关 键 词：脊柱炎 强直性 脊柱关节炎 患者 指南 

分 类 号：R593.23[医药卫生—内科学]