河南省某医院癫痫患儿家长居家照护的分析  

Study on the home care experience of parents of children with epilepsy in a hospital in Henan Province

作　　者：武园园 孟洁[1] 余自娟 弓高云 刘芬[1] 张艳[3] WU Yuanyuan;MENG Jie;YU Zijuan;GONG Gaoyun;LIU Fen;ZHANG Yan(Children's Hospital Afiliated to Zhengzhou University(Zhengzhou Children's Hospital),Zhengzhou 450053,China;Xuanwu Hospital of Capital Medical University,Beiing 100053,China;School of Nursing and Health,Zhengzhou University,Zhengzhou 450001,China)

机构地区：[1]郑州大学附属儿童医院郑州儿童医院神经内科,郑州450053 [2]首都医科大学宣武医院护理部,北京100053 [3]郑州大学护理与健康学院,郑州450001

出　　处：《癫痫杂志》2020年第4期320-324,共5页Journal of Epilepsy

摘　　要：目的深入探讨癫痫患儿家长居家照护的体验,分析其照护能力的现状及真正的影响因素,为提升照护能力提供依据。方法采用描述性研究的方法,对2019年12月—2020年1月郑州大学附属儿童医院收治的14例癫痫患儿的家长进行深度访谈,并采用类属分析法进行资料分析。结果癫痫患儿家长居家照护体验包括四个主题:照护能力薄弱、身心疲惫、支持系统薄弱、对医学专业支持的期待。结论医护人员应结合癫痫患儿家长需求及照护能力的影响因素,开展"线上"、"线下"相结合的癫痫知识及照护技能的健康教育指导,以提升其照护能力。Objective To deeply discuss the home care experience of parents of children with epilepsy,analyzed the current status of care ability and the real influencing factors,and provide a basis to improve their care ability.Methods Descriptive research was used to conduct in-depth interviews with parents of 14 children with epilepsy who were admitted to the Children’s Hospital of Zhengzhou University from December 2019 to January 2020,and data analysis was performed by using the generic analysis method.Results The home care experience of parents of children with epilepsy includes four themes:weak nursing ability,physical and mental fatigue,weak support system,and expectation of medical professional support.Conclusion Medical staffs should combine the needs of parents of children with epilepsy and the influencing factors of care ability to carry out health education guidance of online and offline epilepsy knowledge and care skills to improve their care ability.

关 键 词：癫痫 照护能力 居家照护 

分 类 号：R473.74[医药卫生—护理学]