原发性肾病综合征患儿家长延续护理需求调查  

Investigation and analysis of transitional care needs among the parents of children with primary nephrotic syndrome

作　　者：张晓曼 李振香[1] 马昕璐 刘玉杰 王伟[4] Zhang Xiaoman;Li Zhenxiang;Ma Xinlu;Liu Yujie;Wang Wei(Department of Outpatient,Shandong Provincial Hospital Affiliated to Shandong University,Ji′nan 250021,China;Nursing College of Shandong University,Ji′nan 250012,China;Nursing College of Shandong University of Traditional Chinese Medicine,Ji′nan 250355,China;Department of Cardiology,Shandong Provincial Hospital Affiliated to Shandong University,Ji′nan 250021,China)

机构地区：[1]山东大学附属省立医院门诊部,济南250021 [2]山东大学护理学院,济南250012 [3]山东中医药大学护理学院,济南250355 [4]山东大学附属省立医院心内科,济南250021

出　　处：《中国实用护理杂志》2020年第24期1880-1885,共6页Chinese Journal of Practical Nursing

基　　金：山东省重点研发计划项目(2016GSF201224)。

摘　　要：目的调查原发性肾病综合征患儿家长对于延续护理的需求并分析其影响因素。方法采用便利抽样法,抽取山东大学附属省立医院儿童肾病科就诊的240名患儿家长作为研究对象,使用自制的儿童肾病综合征患儿家长延续护理服务需求问卷对患儿家长进行调查,并进行分析统计。结果患儿家长延续护理服务总均分为(4.12±1.08)分,其中对于疾病知识、并发症预防及病情监测等专业护理服务维度的需求最高,为(4.67±0.53)分;52.80%(113/214)的患儿家长希望通过网络通讯的方式接受延续护理服务;64.49%(138/214)的患儿家长希望由专科医生和护士为其进行护理服务;多元逐步回归分析显示,家长的年龄、文化程度、患儿住院时间、患儿激素使用时间、感染发生情况是影响患儿家长延续护理服务需求的因素(P<0.01)。结论原发性肾病综合征患儿家长对于延续护理的需求较高;建议发挥专业医护团队的引领作用,逐步形成医院—社区联动延续护理模式;年龄、文化程度、月收入、患儿住院时间和激素使用时间不同的患儿家长延续护理需求程度不同,建议医院探索并制订具有针对性和个性化的延续护理服务模式。Objective To explore transition care needs among the parents of children with primary nephrotic syndrome and analyze the influencing factors.Methods With convenient sampling method,parents of children with primary nephrotic syndrome were selected in the children's nephrology department of a tertiary grade A hospital in Shandong province.A total of 240 parents were enrolled in the study and they were investigated by using a self-designed questionnaire of transitional care needs of parents of children with primary nephrotic syndrome.Results The total score of transitional care needs for parents was(4.12±1.08)points.The demand for disease knowledge,complication prevention and condition monitoring was the highest(4.67±0.53)points.52.80%(113/214)of parents hope to receive transitional care services through network communication.64.49%(138/214)of the parents want specialist doctors and nurses to provide nursing services for them.Multivariate stepwise regression analysis showed that age,education level,monthly income,hospitalization time and hormone use time of the children were the factors influencing the parents'demand for transitional care services(P<0.01).Conclusion Parents of children with primary nephrotic syndrome have a high demand for transitional care.It is suggested to give full play to the leading role of professional medical teams and gradually form a hospital-community linkage transitional nursing mode;Parents of children with different age,education level,monthly income,hospitalization time and hormone use time have different needs for transitional care thus individualized transitional nursing for different patients are expected.

关 键 词：原发性肾病综合征 儿童 延续护理 需求 影响因素 

分 类 号：R473.72[医药卫生—护理学]