脑瘫患儿父母照护体验质性研究的Meta整合  

The caregiving experiences of parents with Cerebral Palsy children:a Meta-synthesis of qualitative studies

作　　者：彭梦云 吴丽 赵方方 关红[1] PENG Mengyun;WU Li;ZHAO Fangfang;GUAN Hong(Nursing Department,Second Affiliated Hospital of Dalian Medical University,Dalian,116021,China)

机构地区：[1]大连医科大学附属第二医院护理部,辽宁省116021

出　　处：《中国护理管理》2020年第9期1379-1385,共7页Chinese Nursing Management

摘　　要：目的:系统评价脑瘫患儿父母的照护体验。方法:计算机检索PubMed、Web of Science、EBSCO、ScienceDirect、万方、知网和维普数据库,搜集关于脑瘫患儿父母照护体验的质性研究。采用“澳大利亚JBI循证卫生保健中心(2008)质性研究质量评价标准”评价,以汇集性整合方法对结果进行整合。结果:共纳入12项研究,提炼36个完好明确的研究结果,归纳组合成11个新的类别,并综合成3个整合结果。整合结果1:父母作为脑瘫患儿的主要照顾者,照护中面临的挑战和经济负担使其身心疲惫。整合结果2:父母在照护中缺乏家庭支持,不被理解;感知能力有限,积极渴望得到外界支持与帮助。整合结果3:伴随照护时间的推移,父母不断自我调整,获得积极心理成长并逐渐适应照顾者角色。结论:医护人员需重视脑瘫患儿父母的照护体验,在其进行心理、身体及生活调适过程中,主动给予心理疏导并提供照护知识技能指导,协助其胜任照顾者这一角色,促进脑瘫患儿健康成长。Objective:To synthesise the caregiving experience of parents with Cerebral Palsy children.Methods:We searched PubMed,Web of Science,EBSCO,ScienceDirect,Wanfang,CNKI and VIP databases.Qualitative studies about the parental caregiving experiences of children with Cerebral Palsy were included,and the results were assessed by a pooled integration approach using the Australian JBI Evidence-Based Health Care Center(2008)Quality Evaluation Standards for Quality Research.Results:A total of 12 studies were included to refine 36 well-defined findings,which were combined into 11 new categories and integrated into 3 integrated results.Integrated theme 1:As the main caregivers of children with Cerebral Palsy,parents are exhausted physically and mentally due to the challenges and financial burdens in the care.Integrated theme 2:Parents lack family support in caring and are not understood;they actively desire external support and help due to the limited ability.Integrated theme 3:With the passage of care time,parents constantly adjust themselves,gain positive psychological growth and gradually adapt to the role of caregiver.Conclusion:The caregiving experiences of parents with Cerebral Palsy children are worthy of attention.It's necessary to provide psychological counseling and guidance on caregiving knowledge and skills during the process of parents,psychological,physical and life adjustment,to assist them in the role of caregivers and to promote the healthy growth of children with Cerebral Palsy.

关 键 词：脑瘫患儿 父母 照护体验 质性研究 Meta整合 

分 类 号：R47[医药卫生—护理学]