矮小症患儿激素替代治疗依从性影响因素的质性研究  

Qualitative study on the factors affecting the compliance of hormone replacement therapy in children with short stature

作　　者：荣月芳 谢安慰[2] 徐晓耘[3] 缪二梅[1] Rong Yuefang;Xie Anwei;Xu Xiaoyun;Miao Ermei(Pediatric Outpatient Service,Affiliated Hospital of Nantong University,Nantong 226001,China;Department of Infectious Diseases,Children's Hospital of Soochow University,Suzhou 215000,China;Department of Infection Management,Affiliated Hospital of Nantong University,Nantong 226001,China)

机构地区：[1]南通大学附属医院儿科门诊,南通226001 [2]苏州大学附属儿童医院感染性疾病科,苏州215000 [3]南通大学附属医院感染管理科,南通226001

出　　处：《中华现代护理杂志》2020年第28期3888-3893,共6页Chinese Journal of Modern Nursing

基　　金：2017年度南通市市级科技计划(指导性)项目(QZ17033)。

摘　　要：目的探讨矮小症患儿激素替代治疗中依从性的影响因素。方法采用目的抽样法,选择2018年8—12月南通大学附属医院14例激素替代治疗依从性差矮小症患儿的14名家长进行半结构式访谈,应用Colaizzi 7步分析法分析资料。结果影响患儿激素替代治疗依从性的因素归纳出4个主题,分别为家长疾病应对失败、患儿出现心身问题、经济负担过重、人文关怀不足。结论矮小症患儿激素替代治疗的依从性受自身主观和社会客观因素等诸多因素的影响,医护人员应给予重点关注并持续提供个性化延续护理,注重人文关怀以提高患儿治疗的依从性,达到理想的治疗效果。Objective To explore the factors affecting the compliance with hormone replacement therapy in children with short stature.Methods Totally 14 parents of 14 children with short stature who had poor compliance with hormone replacement therapy in the Affiliated Hospital of Nantong University from August to December 2018 were selected by purposive sampling and received semi-structured interview.Colaizzi's 7-step analysis was used to analyze the data.Results The factors affecting children's compliance with hormone replacement therapy were summarized into 4 themes,namely,parents'failure to cope with the disease,the psychological and physical problems of the children,the excessive financial burden,and the lack of humanistic care.Conclusions The compliance with hormone replacement therapy in children with short stature is affected by many factors such as their own and social factors.Medical and nursing staff should pay special attention and provide personalized continuous care,and pay attention to humanistic care to improve their treatment compliance and achieve ideal treatment effects.

关 键 词：激素替代治疗 矮小症 依从性 质性研究 人文关怀 

分 类 号：R473.73[医药卫生—护理学]