儿童至成人过渡期癫痫青少年参与健康照护意向及影响因素研究  

Status and influencing factors of willingness of participation in health care among transitioning adolescents with epilepsy

作　　者：陈文劲[1] 崔璀[2] 郑显兰[2] 李双子[1] 赵应红[3] 冉秦[4] 陶秋吉[5] Chen Wenjin;Cui Cui;Zheng Xianlan;Li Shuangzi;Zhao Yinghong;Ran Qin;Tao Qiuji(Department of Neurology,Children′s Hospital of Chongqing Medical University,Chongqing 400014,China)

机构地区：[1]重庆医科大学附属儿童医院神经内科疾病诊治中心,重庆400014 [2]重庆医科大学附属儿童医院护理部 [3]贵州省遵义市妇幼保健院科研处 [4]重庆三峡中心医院儿童神经内科 [5]四川大学华西第二医院神经内科

出　　处：《护理学杂志》2021年第5期24-29,共6页Journal of Nursing Science

基　　金：重庆市科学技术局技术创新与应用发展项目(cstc2019jscxmsxmX0111)。

摘　　要：目的调查儿童至成人过渡期的癫痫患者参与健康照护意向并分析其影响因素。方法采用便利抽样法,选取428例儿童至成人过渡期的癫痫青少年为研究对象,采用患者参与健康照护意向量表、社会支持量表和青少年健康相关行为自我效能量表,调查其参与健康照护意向并分析其影响因素。结果癫痫青少年参与健康照护意向总分(124.39±16.82)分,6个参与维度得分由高到低依次为:参与就医决策、参与诉求、参与质询监督、参与信息互动、参与治疗照护和参与诊疗决策。多元线性回归分析结果显示,年龄、病程、发作类型、共患疾病种类、家庭结构类型、社会支持、自我效能水平为青少年参与健康照护意向的主要影响因素(P<0.05,P<0.01)。结论癫痫青少年参与健康照护意向处于中等水平;年龄越大、病程越长和混合性发作疾病类型、流动家庭结构的青少年参与健康照护意向水平较高;提供多角度社会支持、提高自我效能,能增加癫痫青少年参与健康照的意愿,有利于该群体由儿童至成人医疗的顺利过渡。Objective To investigate the status and analyze the influencing factors of the willingness of participation in health care among transitioning adolescents with epilepsy.Methods A convenient sampling method was used to select 428 transitioning adolescents with epilepsy(12-18 years old).The adolescents were surveyed with the Willingness of Patient Participation in Health Care Scale,the Social Support Rating Scale and the Adolescent Health Care Self-Efficacy Scale.Results The total score of the willingness of adolescent participation was(124.39±16.82),with the dimensions in descending order being decision about seeking medical help,requests,inquiry and supervision,information interaction,treatment and care,and diagnosis and treatment decision.The multivariate linear regression analysis showed that ages,course of disease,type of epileptic attack,numbers of comorbidities,type of family structure,social support and level of self-efficacy contributed to influence willingness of adolescent participation in health care(P<0.05,P<0.01).Conclusion Willingness of participation in health care among adolescents with epilepsy was at a medium level.Adolescents with older age,longer disease course,mixed type of epileptic attack and mobile family structure had higher wil-lingness to participate in health care.Providing multi-angle social support to improve self-efficacy of epileptic adolescents,is helpful to enhance adolescent participation in health care,and finally smooth the transition from children to adults.

关 键 词：青少年 癫痫 儿童至成人过渡期 参与健康照护行为 社会支持 自我效能 影响因素 

分 类 号：R473.72[医药卫生—护理学]