5~7岁住院癌症患儿生活质量自我报告与父母报告的一致性研究  

Concordance between child and parent reports on quality of life in hospitalized pediatric cancer patients aged 5-7 years

作　　者：成磊[1] 王颖雯[2] 刘芳[2] 康琼芳 李思龙 Cheng Lei;Wang Yingwen;Liu Fang;Kang Qiongfang;Li Silong(School of Nursing,Fudan University,Shanghai 200032,China)

机构地区：[1]复旦大学护理学院,上海200032 [2]复旦大学附属儿科医院

出　　处：《护理学杂志》2021年第7期31-33,54,共4页Journal of Nursing Science

基　　金：国家自然科学基金青年基金项目(71904030);上海市浦江人才项目(2019PJC006);复旦大学-复星护理科研基金项目(FNF201847)。

摘　　要：目的调查分析5~7岁住院癌症患儿生活质量的自我报告与父母报告的一致性。方法采用方便抽样法,对105对5~7岁癌症患儿及其父母采用儿童生活质量普适性核心量表和儿童生活质量癌症特异性量表进行问卷调查。结果患儿自我报告生活质量与父母报告存在不一致性,父母报告得分低于患儿的频次(154次)多于患儿报告得分低于父母的频次(53次)。结论5~7岁癌症患儿自我报告具有一定的可行性,但患儿与父母的报告存在不一致性,需充分考虑影响报告一致性的可能因素,合理应用患者报告结局帮助患儿和家庭主动关注疾病和治疗所带来的反应。Objective To investigate the concordance of pediatric self and parent reports on quality of life of children with cancer aged 5-7 during hospitalization.Methods Convenient sampling method was used to select 105 dyads of children aged 5-7 and their pa-rents.The survey instruments included a general information questionnaire,Pediatric Quality of Life Inventory^(TM)Generic Core Module(PedsQL^(TM)4.0,5-7 years old children′s version),and Pediatric Quality of Life Inventory^(TM)Cancer Module(PedsQL^(TM)3.0,5-7 years old children′s version).Results The children reported quality of life were discordant with parents′report.There were 154 counts of parent-reported scores lower than children-reported scores,versus 53 counts of children-reported scores lower than parent-reported scores.Conclusion Self-reporting by cancer children aged 5-7 years is feasible,but there is discordance between pa-rent and child reports.In clinical nursing practice,it is necessary to fully consider the possible factors affecting the concordance,appropriately utilize patient-reported outcomes to help children and families bring attention to the reaction from diseases and treatments.

关 键 词：儿童 癌症 自我报告 父母报告 生活质量 一致性 

分 类 号：R473.72[医药卫生—护理学]