急性淋巴细胞性白血病患儿母亲疾病获益感的质性研究  

Benefit finding in mothers of children with acute lymphoblastic leukemia:a qualitative study

作　　者：王学梅 吕张霄 王轲 仝彤 王婧婷 Wang Xuemei;Lv Zhangxiao;Wang Ke;Tong Tong;Wang Jingting(School of Basic Medicine 6th Student Troops 18th Team,Naval Medical University,Shanghai 200433,China;School of Nursing,Naval Medical University,Shanghai 200433,China)

机构地区：[1]海军军医大学基础医学院学员六大队18队,上海200433 [2]海军军医大学护理系,上海200433

出　　处：《中国实用护理杂志》2020年第17期1313-1318,共6页Chinese Journal of Practical Nursing

基　　金：国家自然科学基金青年科学基金项目(71904195);上海市科委青年科技英才扬帆计划项目(18YF1429400);海军军医大学护理学高峰学科青年培育工程拔尖类项目(18QPBJ03);海军军医大学大学生孵化基地项目(FH2019130)。

摘　　要：目的了解急性淋巴细胞性白血病(ALL)患儿母亲照护患儿过程中产生的疾病获益感。方法采用目的抽样法,对11名主要参与ALL患儿日常照护的患儿母亲进行半结构访谈,访谈资料采用内容分析法分析。结果ALL患儿母亲可体验到疾病获益感,可归纳为三个主题:个人成长、家庭关系增进、多来源的社会支持。结论ALL患儿母亲在照顾患儿过程中能体验到疾病获益感,临床护理工作者应深入挖掘、积极引导并有效利用患儿母亲的疾病获益感,以缓解其不良心理状态,使其更好地配合患儿治疗和护理,促进ALL患儿及其母亲身心健康。Objective To understand mothers′benefit finding in caring for thier children with Acute Lymphoblastic Leukemia(ALL).Methods By purposive sampling method,eleven mothers who were mainly involved in daily care of their children with ALL were selected.Semi-structured in-depth interviews were conducted with the 11 mothers.The data were analyzed by content analysis method.Results Mothers had benefit finding which could be mainly classified into three themes:individual growth,family relationship enhancement,and multi-source society support.Conclusions Mothers of children with ALL have experienced a sense of benefit finding in the process of caring for their children.Nurses are suggested to help mothers in exploring benefit finding,actively guide and effectively utilize the sense of benefit finding in mothers of children with ALL,so as to alleviate mothers′adverse psychological state and to promote mothers′better coordination with follow-up treatment and caring for the children.

关 键 词：急性淋巴细胞性白血病 母亲 疾病获益感 

分 类 号：R473.73[医药卫生—护理学]