社区居家痴呆症照顾者负担的真实体验  

Lived Experience of caregivers’burden for dementia patients at home in community

作　　者：李英丽[1] 关庆 王月枫[1] 孟丽娜[1] LI Ying-li;GUAN Qing;WANG Yue-feng;MENG Li-na(Harbin Medical University Daqing,Daqing,Harbin 163319,China)

机构地区：[1]哈尔滨医科大学大庆校区,哈尔滨大庆163319

出　　处：《阿尔茨海默病及相关病杂志》2021年第3期249-252,共4页Chinese Journal of Alzheimer's Disease and Related Disorders

基　　金：2017年度教育部人文社会科学研究青年基金项目(17YJCZH129);黑龙江省教育科学“十三五”规划2017年度重点课题(GBB1317073);哈尔滨医科大学大庆校区2018年度教学研究基金项目(XNJY1807)。

摘　　要：目的:探索社区居家痴呆症照顾者负担的真实体验,以期为痴呆症照顾者提供针对性的支持与帮助。方法:采取方便取样方法,选取大庆市11名社区居家痴呆症照顾者进行深入访谈,采用Colaizzi现象学七步分析法进行资料分析。结果:经资料分析,分析出五个主题:身体疲惫;心理方面对病人“安全”过度焦虑;经济负担;沟通交流障碍,难以获取患者真实需求;情感互动不对等。结论:痴呆症照顾者负担影响了照顾者的身心健康,同时因为沟通交流与情感互动不顺畅的问题,也对照护效果产生影响,应从政策与专业层面给与痴呆症家庭及照顾者专业化支持与帮助。Objective:The objective of this study was to explore the lived experience of caregivers’burden for dementia patients at home in community in order to give caregivers targeted support and help.Methods:A total of 11 dementia patients’caregivers at home in a community were chosen to interview deeply.Data analysis used the methods of phenomenology.Results:After analysis five themes were found,that were exhaustion,over-anxiety for patients’safety,economic burden,communication barriers,hardly to get patients’real needs,unequal emotional connection.Conclusions:Caregivers’burden affected their physical and mental health.Communication barriers and blocked emotional connection also influenced the effect of care.We should offer dementia family and caregivers professional support and help with policy and professional standpoint.

关 键 词：居家养老 痴呆症 照顾者 质性研究 

分 类 号：R473.2[医药卫生—护理学]