漏斗胸Nuss矫治术后患儿父母居家照护体验的质性研究  

A Qualitative Study of Parents Caring Experience for ChOdren undergoing Nuss Procedure

作　　者：赵红英 冉秦 龚梅 ZHAO Hong-ying;RAN Qin;GONG Mei(Department of pediatric surgery,Chongqing three Gorges central hospital of Chongqing university,Chongqing 404000)

机构地区：[1]重庆大学附属三峡医院儿童心脑骨科,重庆404000

出　　处：《中国伤残医学》2022年第6期18-21,共4页Chinese Journal of Trauma and Disability Medicine

基　　金：重庆市技术创新与应用发展专项(cstc2020jscx-kjfp0005)。

摘　　要：目的:探索先天性漏斗胸患儿行Nuss矫治术后钢板固定期间患儿父母照护的真实体验。方法:采用目的抽样法,选取10例行Nuss矫治术后患儿的父母为研究对象,进行深入访谈、现场录音和笔录,采用Colaizzi现象学分析法分析资料。结果:得出5个主题:知识缺乏;康复训练依从性差;教育学习受阻;担心预后和成长;照顾中感受到负担(经济负担加重、早期精神负担重)。结论:Nuss矫治术后钢板植入期间患儿的父母在居家照护过程中存在较多的问题,护理人贾应给与高度重视并有针对性地采取干预措施,帮助患儿顺利度过钢板取出前的过渡期。Objective:To explore the real caring experience of parents for children with congenital pectus excavatum(PE)accepting Nuss procedure with bar implantation.Methods:Parents of 10 children with congenital PE after Nuss procedure were participated in the study according to purpose sampling method.Data were collected by In-depth interviews,live recordings and transcripts and analyzed by Colaizzi phenomenological analysis.Results:Five themes are summarized from the research,including lack of knowledge,poor compliance with rehabilitation training,education and learning are hampered,worrying about prognosis and growth,feel the burden of care(increased economic burden、early mental burden is heavy).Conclusion:There are many problems in the family care supplied by the parents of the children with PE after Nuss procedure.Nursing staff should pay more attention and take targeted intervention measures to help the children go through the bar carrying period before the bar removal.

关 键 词：漏斗胸 NUSS手术 父母 居家照护体验 质性研究 

分 类 号：R561[医药卫生—呼吸系统]