Ⅱ型脊髓肌肉萎缩症患儿基因治疗的护理  

Case report of gene therapy and nursing care for children with type Ⅱ spinal muscular atrophy

作　　者：齐红阳 李文欢[1] 王华[1] Qi Hongyang;Li Wenhuan;Wang Hua(Department of Pediatric Neurology,Shengjing Hospital Affiliated to China Medical University,Shenyang 110000,China)

机构地区：[1]中国医科大学附属盛京医院小儿神经内科,沈阳110000

出　　处：《中国实用护理杂志》2022年第17期1344-1347,共4页Chinese Journal of Practical Nursing

摘　　要：目的总结3例脊髓性肌萎缩症患儿鞘内注射诺西那生钠注射液的护理方法。方法2020年3月至2021年3月,采用以个案管理模式为基础的多学科联合照护对3例脊髓性肌萎缩症患儿完成多学科个体化评估、术前和术中护理配合、术后并发症的观察和处理。结果3例患儿均顺利完成鞘内注射,于术后第3天出院;随访未发生严重并发症。结论多学科联合照护对鞘内注射诺西那生钠注射液患儿有着积极的意义。Objective To summarize the nursing care of 3 cases of spinal muscular atrophy(SMA)with intrathecal injection of Nusinersen sodium injections.Methods From March 2020 to March 2021,3 children patients with SMA received Nusinersen sodium injections.Multidisciplinary care was applied,the key points of nursing care include:multidisciplinary individualized assessments,multidisciplinary care based on case management model,preoperative and intraoperative care cooperation,and postoperative observations and management of complications.Results All the three children successfully completed intrathecal injection and were discharged on the second day after surgery.No serious complications occurred.Conclusions Collaborative multidisciplinary care shows positive significance for children with intrathecal Nusinersen sodium injections.

关 键 词：Ⅱ型脊髓肌肉萎缩症 诺西那生钠注射液 多学科联合照护 

分 类 号：R473.74[医药卫生—护理学]