A minimum data set for traumatic brain injuries in Iran  

作　　者：Maryam Edalatfar Mohsen Sadeghi-Naini Hamid Reza Khayat Kashani Mitra Movahed Mahdi Sharif-Alhoseini 

机构地区：[1]Department of Neurosurgery,Imam Hossein Hospital,Shahid Beheshti University of Medical Sciences,Tehran,Iran [2]Department of Psychology,HELP University,Kuala Lumpur,Malaysia [3]Sina Trauma and Surgery Research Center,Tehran University of Medical Sciences,Tehran,Iran

出　　处：《Chinese Journal of Traumatology》2022年第5期283-292,共10页中华创伤杂志（英文版）

基　　金：This study was supported by grant number 43012 from Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran.

摘　　要：Purpose: Traumatic brain injury (TBI) is one of the major public health concerns worldwide. Developing a TBI registry could facilitate characterizing TBI, monitoring the quality of care, and quantifying the burden of TBI by collecting comparable and standardized epidemiological and clinical data. However, a national standard tool for data collection of the TBI registry has not been developed in Iran yet. This study aimed to develop a national minimum data set (MDS) for a hospital-based registry of patients suffering from TBI in Iran. Methods: The MDS was designed in 2 phases, including a literature review and a Delphi study with content validation by an expert panel. After the literature review, a comprehensive list of administrative and clinical items was obtained. Through a two-round e-Delphi approach conducted by invited experts with clinical and research experience in the field of TBI, the final data elements were selected. Results: A MDS of TBI was assigned to 2 parts: administrative part with 5 categories including 52 data elements, and clinical part with 9 categories including 130 data elements. Conclusion: For the first time in Iran, we developed a MDS specified for TBI consisting of 182 data elements. The MDS would facilitate implementing a TBI’s national level registry and providing essential, comparable and standardized information.

关 键 词：Traumatic brain injuries REGISTRIES Data systems 

分 类 号：R651.15[医药卫生—外科学]