白血病患儿父母支持系统APP中症状管理模块的开发与可用性评价  

Development and usability evaluation of the symptom management module in the support APP for parents of children with leukemia

作　　者：王婧婷 岳朋 袁长蓉 WANG Jingting;YUE Peng;YUAN Changrong(School of Nursing,Fudan University,Shanghai,200032,China)

机构地区：[1]复旦大学护理学院,上海市200032 [2]海军军医大学护理系

出　　处：《中国护理管理》2022年第10期1458-1461,共4页Chinese Nursing Management

基　　金：国家自然科学基金青年科学基金项目(71904195);中国博士后科学基金第68批面上项目(2020M681188)。

摘　　要：目的 :开发白血病患儿父母支持系统APP中的症状管理模块并进行可用性评价,为父母参与患儿症状管理提供支持。方法 :对白血病患儿父母、医护人员进行访谈,了解适合患儿父母参与的症状管理项目及症状管理的支持需求,以及对于支持系统APP中症状管理模块的功能需求。根据以上内容构建症状管理模块的图文知识库,与软件开发人员合作开发症状管理模块,实现相应功能,并对症状管理模块进行形成性可用性评价和总结性可用性评价。结果 :构建了针对适合患儿父母参与的41项生理症状和6项心理症状的图文知识库,开发了白血病患儿父母支持系统APP中的症状管理模块,功能包括主动浏览和搜索,基于症状主观评估结果的症状管理信息推荐,以及基于混合推荐技术的症状管理信息推荐,症状管理模块可用性良好。结论 :白血病患儿父母支持系统APP中的症状管理模块的内容和功能契合白血病患儿父母需求,具有良好的可用性。Objective: To develop the symptom management module in the support APP for parents of children with leukemia, and evaluate its usability. Methods: The parents and medical staff of children with leukemia were interviewed to understand the symptom management items suitable for parents to participate in, patients’ need of support when participating in symptom management, and their expectation for functions of the module in the support APP. Later a knowledge base of images and texts pertaining to the symptom management module was constructed to set up the symptom management module in cooperation with software engineers to realize the corresponding functions, after which formative usability evaluation and summative usability evaluation were carried out for the module. Results: The knowledge base relevant to 41 physiological symptoms and 6 psychological symptoms was formed to establish the symptom management module of the support APP for parents of children with leukemia, offering not only active search and browsing of symptom management information, but also symptom management information recommendation based on self-reported symptom assessment results and symptom management information recommendation based on hybrid recommendation. The usability evaluation of the symptom management module demonstrated satisfying results. Conclusion: This study has developed the symptom management module in the support APP for parents of children with leukemia, whose functions meet well the needs of those parents. The module with good usability can provide support for parents to participate in the symptom management of their children.

关 键 词：白血病 移动医疗 症状管理 智能推荐 智慧护理 

分 类 号：R47[医药卫生—护理学] R197[医药卫生—临床医学]