年轻乳腺癌患者生育信息全程支持平台的构建与应用  

Construction and application of an online platform to support fertility information for young breast cancer patients

作　　者：汤聪 乔成平 姜晨[1] 于广月 陶小香 吴小香[1] 赵蕾 周满[1] Tang Cong;Qiao Chengping;Jiang Chen;Yu Guangyue;Tao Xiaoxiang;Wu Xiaoxiang;Zhao Lei;Zhou Man(Department of Oncology,Women′s Hospital of Nanjing Medical University,Nanjing 210004,China)

机构地区：[1]南京医科大学附属妇产医院肿瘤病区,江苏南京210004

出　　处：《护理学杂志》2022年第17期23-27,共5页Journal of Nursing Science

基　　金：南京医科大学科技发展基金项目(NMUB2019228);南京医科大学护理研究中心肿瘤护理研究分中心开放课题(NYZLKF-2-202110)。

摘　　要：目的构建年轻乳腺癌患者生育信息全程支持平台,并评价其应用效果。方法以患者需求为导向,依托互联网技术构建满足年轻乳腺癌患者诊疗全程的生育信息支持平台。将52例尚未开始治疗的年轻乳腺癌患者按照入院时间分为对照组27例,观察组25例。对照组按常规进行健康教育,观察组采用支持平台进行管理。干预3个月评价效果。结果对照组25例、观察组24例完成研究。干预3个月观察组生育忧虑、生育知识和医疗社会支持量表得分显著优于对照组(均P<0.05)。83.33%~100%观察组患者对平台使用持肯定态度。结论生育信息全程支持平台的应用可降低年轻乳腺癌患者的生育忧虑,提高生育相关知识和患者的医疗社会支持水平,获得患者的好评。Objective To construct an online platform to support fertility information for young breast cancer patients and to evaluate its application effect.Methods Relying on Internet technology,a patient needs-oriented online platform was developed to meet the fertility information needs of young breast cancer patients during the whole course of treatment.A total of 52 young breast cancer patients who had not yet started treatment were divided into a control group(n=27)and an intervention group(n=25)according to their admission time.The control group was given routine health education,and the intervention group received alternative education through the online platform.The effect was evaluated after 3 months of intervention.Results Twenty-five patients in the control group and 24 in the observation group completed the study.Compared with the control group,the intervention group had significantly lower Reproductive Concerns After Cancer(RCAC)scale score,while higher fertility knowledge and Medical Outcomes Study Social Support Survey(MOS-SSS)score after the intervention(all P<0.05).More than eighty percent(83.33%-100%)of the patients in the observation group had positive attitudes toward the use of the platform.Conclusion Application of the online platform to support fertility information can reduce fertility-related concerns of young breast cancer patients and improve their fertility-related knowledge and medical social support,which is well received by patients.

关 键 词：乳腺癌 年轻女性 信息化平台 生育忧虑 生育知识 医疗社会支持 健康教育 信息支持 

分 类 号：R473.73[医药卫生—护理学] R737.9[医药卫生—临床医学]