添加微信平台的延续护理对生酮饮食患儿、父母及医务人员的影响  

Efficacy of wechat combined with continuing nursing on ketogenic diet children,parents and medical staff

作　　者：黄翠 王娟[1] HUANG Cui;WANG Juan(Departmentof Neurology,Children's Hospital of Chongqing Medical University,Chongqing 400014,China)

机构地区：[1]重庆医科大学附属儿童医院神经内科,重庆400014

出　　处：《癫痫杂志》2023年第1期11-15,共5页Journal of Epilepsy

基　　金：2021教育部重点实验室青年项目(3000971);国家自然科学基金(81701277)。

摘　　要：目的 研究将微信平台添加在延续护理中对生酮饮食患儿生活质量、父母情绪及医务人员时间付出的影响。方法 选取重庆医科大学附属儿童医院神经内科2014年11月—2022年6月收治的难治性癫痫生酮饮食患儿140例,其中男116例、女24例,平均年龄(8.42±2.44)岁,随机取样法分为对照组(常规延续护理)71例、干预组(添加微信的延续护理)69例,在出院前、后3个月比较两组患儿生活质量[癫痫儿童生活质量评定量表(Quality of life in children with epilepsy-16,QOLCE-16)],父母焦虑[焦虑自评量表(Self-rating anxiety scale,SAS)]、抑郁[抑郁自评量表(Self-rating depression scale,SDS)],以及医务人员为两组患者付出的时间。结果 干预前两组患者生活质量、家属情绪无差异;3个月后随访两组患儿生活质量明显改善[(43.59±10.00) vs.(40.14±10.44),P<0.05],干预组较对照组患儿生活质量QOLCE-16评分更高(P<0.05)。两组家属情绪SAS及SDS均有明显改善[(37.19±2.90) vs.(50.85±3.76),(40.14±3.52) vs.(49.29±3.37),P<0.01],干预组父母焦虑SAS、抑郁SDS评分更低(P<0.01)。医务人员对干预组时间付出更多[(136.17±7.43) vs.(65.55±7.48), P<0.01]。结论延续护理可改善生酮饮食患儿生活质量及家属的负性情绪,添加微信平台可进一步强化这种正性效果,同时需要医护人员付出更多的时间。Objective To evaluate the efficacy of Wechat combined with continuing nursing on the quality of life of epilepsy children with ketogenic diet, parents’ mood and the time commitment of medical staff. Methods Data were collected from 140 children with intractable epilepsy with ketogenic diet admitted to the Department of Neurology,Children’s Hospital Affiliated to Chongqing Medical University from November 2014 to June 2022, including 116 males and 24 females, with an average age of(8.42±2.44) years. The random sampling method was divided into control group(continuing nursing) 71 cases, intervention group(Wechat combined with continuing nursing) 69 cases. The quality of life of the children(QOLCE-16) in the two groups was compared before discharge and 3 months after discharge, as well as parental anxiety(SAS), depression(SDS), and the amount of time medical staff spent with both groups. Results There was no difference in the quality of life and parental emotion between the two groups before intervention. After 3 months,the quality of life of the two groups was significantly improved [(43.59±10.00) vs.(40.14±10.44), P<0.05], and the QOLCE-16 score of the intervention group was higher than that of the control group(P<0.05). The parental mood SAS and SDS in both groups were significantly improved [(37.19±2.90) vs.(50.85±3.76),(40.14±3.52) vs.(49.29±3.37), P<0.01], and the SAS and SDS scores of anxiety and depression of parents in the intervention group were lower than that of the control group(P<0.01). Medical staff spent more time on intervention group [(136.17±7.43) vs.(65.55±7.48), P<0.01]. Conclusion Continuing nursing can improve the quality of life of children with ketogenic diet and the negative emotions of their parents. The combination of Wechat and continuing nursing can further strengthen this positive effect, and requires more time of medical staff.

关 键 词：微信 延续护理 情绪 生活质量 生酮饮食 

分 类 号：R473.74[医药卫生—护理学]