医务人员对晚期癌症患儿尊严维护的质性研究  

Qualitative research on healthcare providers′ dignity-conserving care for advanced cancer children

作　　者：林君忆 蔡思雨 周翾[3] 邓婵娟 李慧君[4] 郭巧红 Lin Junyi;Cai Siyu;Zhou Xuan;Deng Chanjuan;Li Huijun;Guo Qiaohong(School of Nursing,Capital Medical University,Beijing 100069,China)

机构地区：[1]首都医科大学护理学院,北京100069 [2]国家儿童医学中心首都医科大学附属北京儿童医院临床流行病与循证医学中心 [3]国家儿童医学中心首都医科大学附属北京儿童医院血液病中心 [4]国家儿童医学中心首都医科大学附属北京儿童医院护理部

出　　处：《护理学杂志》2023年第3期8-12,共5页Journal of Nursing Science

基　　金：国家自然科学基金青年科学基金项目(81803102)。

摘　　要：目的了解医务人员对晚期癌症患儿尊严维护的认知及实践体验,为改善晚期癌症患儿尊严维护实践提供参考。方法采用描述性质性研究方法,对13名从事晚期癌症患儿治疗和照护工作的医务人员(8名护士、3名医生、2名安宁疗护志愿者)进行半结构式深入访谈,运用内容分析法对资料进行分析并提炼主题。结果提炼出4个主题:晚期癌症患儿尊严维护影响因素的复杂性,患儿尊严维护现存的多重困境,患儿尊严维护的重要意义,尊严维护实践的推进过程和基本要素。结论医务人员应了解晚期癌症患儿尊严维护影响因素的复杂性,动态持续关注患儿病程阶段和家属的医疗决策,并坚持个体化、充分沟通、尊重和人文关怀等尊严维护的基本要素,进一步推动儿童安宁疗护中尊严维护的临床实践。Objective To understand healthcare providers′ knowledge and practice experience on dignity-conserving care for advanced cancer children, to provide references for improving the quality of dignity-conserving care for advanced cancer children.Methods A qualitative descriptive research method was used and 13 healthcare providers(8 nurses, 3 physicians, 2 hospice volunteers) who had been caring for advanced cancer children were selected to join semi-structured and in-depth interviews.Then content analysis was utilized to analyze the data.Results A total of 4 themes were extracted: the complexity of the factors influencing dignity-conserving care for advanced cancer children, the multi-dimensional dilemmas encountered in the practice of dignity-conserving care for the children, the significance of dignity-conserving care for the children, the promotion process and basic elements of dignity-conserving care practice.Conclusion Healthcare providers are suggested to understand the complexity of the factors influencing dignity-conserving care for advanced cancer children, pay attention to the course of children′s disease and family′s medical decisions dynamically, provide sufficient individualized communication, show respect, and give humanistic care to the children, so as to further promote the practice of dignity-conserving care in pediatric palliative care.

关 键 词：癌症患儿 医务人员 尊严维护 认知 实践 安宁疗护 质性研究 

分 类 号：R473.73[医药卫生—护理学] R473.72[医药卫生—临床医学]