家庭共享参与在听障儿童语言康复中的作用及效果  

The Analysis on the Function and Effect of Family Participation Management under the Guidance of Shared Decision in Speech Rehabilitation Training of Children with Hearing Impairment

作　　者：安秀蓉[1] 高照勤[1] 喜燕[1] 柴广丽[1] 刘霞[1] 刘燕[1] 徐谨 赵婷[1] AN Xiu-rong;GAO Zhao-qin;XI Yan;CHAI Guang-li;LIU Xia;LIU Yan;XU Jin;ZHAO Ting

机构地区：[1]新疆维吾尔自治区人民医院耳鼻喉诊疗中心,乌鲁木齐830000

出　　处：《中国听力语言康复科学杂志》2023年第2期187-191,共5页Chinese Scientific Journal of Hearing and Speech Rehabilitation

摘　　要：目的 分析共享决策引导下家庭参与管理在听障儿童语言康复中的作用。方法 选取2019年1月∽2020年1月本院接受共享决策引导下家庭参与管理语言训练听障儿童31例为观察组,按性别、年龄匹配2018年1月∽2019年12月本院接受常规语言康复训练的32例听障儿童为对照组。比较两组患儿听觉能力、语言能力、社会心理状态及生活质量。结果 与干预前比较,两组干预后2个月、4个月、6个月的听觉能力及语言能力评分均显著上升,且观察组干预后2个月、4个月、6个月的听觉能力及语言能力评分显著高于对照组(P<0.05);两组患儿干预后儿童社会焦虑量表(social anxiety scale for children,SASC)问卷害怕否定评价、社交回避及苦恼、SASC总分较干预前显著下降(P<0.05),观察组干预后害怕否定评价、社交回避及苦恼、SASC总分显著低于对照组(P<0.05);两组干预后儿童家庭生活质量问卷(children using hearing implants quality of life,CuHIQol)父母期望、家庭影响、患儿生存质量及总分较干预前显著上升(P<0.05),观察组干预后各指标及总分显著高于对照组(P<0.05)。结论 共享决策引导下家庭参与管理应用于听障儿童语言康复训练,有利于患儿听觉、语言能力改善,在改善患儿社会心理状态、家庭生活质量上优势更显著。Objective To analyze the function and effect of family participation management under the guidance of shared decision in the speech rehabilitation training of children with hearing impairment. Methods 31 children with hearing impairment who received family participation management under the guidance of shared decision in the speech rehabilitation training in the hospital from January 2019 to January 2020 were selected and included into the observation group, and according to gender, age matching selection principle, 32 cases of children with hearing impairment who received routine speech rehabilitation training at the past period(from January 2018 to December 2019) in the hospital were selected and included into the control group. Auditory ability,language ability, psychosocial status and quality of life were compared between the two groups. Results Compared with those before the intervention, the auditory ability and language ability scores of the two groups significantly increased at 2, 4 and 6 months after the intervention, and the auditory ability and language ability scores of the observation group were significantly higher than those of the control group at 2, 4 and 6 months after the intervention(P<0.05);After the intervention, fear of negative evaluation,social avoidance and distress, and total scores of Social Anxiety Scale of Children(SASC) significantly decreased in both groups compared with those before the intervention(P<0.05), while fear of negative evaluation, social avoidance and distress, total scores of SASC in the observation group were significantly lower than those in the control group(P<0.05);After the intervention, parents’ expectation, family influence, children’s quality of life and total scores of children using hearing implants quality of life(CuHIQol) in the two groups significantly increased compared with those before the intervention(P<0.05), while parents’ expectation, family influence, children’s quality of life and total scores in the observation group were significantly h

关 键 词：儿童 听力障碍 共享决策 家庭参与管理 语言康复 

分 类 号：R764[医药卫生—耳鼻咽喉科]