哮喘儿童家庭管理的质性研究  

A qualitative research on family management of asthma children

作　　者：胡扬帆 杨颖 李月霞[3] 段红梅[1] Hu Yangfan;Yang Ying;Li Yuexia;Duan Hongmei(School of Nursing,Beijing University of Chinese Medicine,Beijing 100102,China;Nursing Department,Children's Hospital,Capital Institute of Pediatrics,Beijing 100020,China;Allergy Department,Children's Hospital,Capital Institute of Pediatrics,Beijing 100020,China)

机构地区：[1]北京中医药大学护理学院,北京100102 [2]首都儿科研究所附属儿童医院护理部,北京100020 [3]首都儿科研究所附属儿童医院变态反应科,北京100020

出　　处：《中华现代护理杂志》2023年第9期1143-1147,共5页Chinese Journal of Modern Nursing

摘　　要：目的:了解哮喘儿童及其照顾者家庭管理的过程和内容,为改善哮喘儿童的健康结局提供依据。方法:本研究为质性研究。采用目的抽样法,于2022年3—4月选取首都儿科研究所附属儿童医院哮喘门诊的26例患儿及其26名主要照顾者为研究对象进行半结构化访谈,采用QSR Nvivo 12软件和主题分析法分析资料。结果:共提炼出4个主题和13个子主题,即哮喘儿童家庭管理疾病相关内容(诱因预防、药物管理、病情监测)、哮喘儿童家庭管理方式(疾病管理观念、哮喘管理期望、疾病管理生活常规、对疾病本质的理解、疾病管理难度)、影响哮喘儿童家庭管理向自我管理过渡的家庭因素(促进过渡因素、阻碍过渡因素)、心理社会状态(麻木、乐观、病耻感)。结论:哮喘儿童家庭管理需要专业护理人员的干预支持,以提升哮喘儿童的家庭管理,改善哮喘儿童的健康结局。Objective To explore the process and content of family management of asthma children and their caregivers,so as to provide basis for improving the health outcomes of asthma children.Methods This study is qualitative research.From March to April 2022,26 children and 26 main caregivers from the Asthma Clinic of the Children's Hospital affiliated to the Capital Institute of Pediatrics were selected by objective sampling for semi-structured interviews.QSR Nvivo 12 software and subject analysis method were used to analyze the data.Results A total of 4 themes and 13 sub-themes were extracted,including the content on family management of asthma children(inducement prevention,drug management,disease monitoring),the family management style of asthma children(disease management concept,asthma management expectation,disease management life routine,disease essence understanding,disease management difficulty),and the family factors affecting the transition of family management of asthma children to self-management(promoting transition factors,obstructing transition factors),psychosocial state(numbness,optimism and stigma).Conclusions The family management of asthma children needs the intervention and support of professional nursing staff to improve the family management and the health outcomes of asthma children.

关 键 词：哮喘 儿童 家庭管理 质性研究 

分 类 号：R473.72[医药卫生—护理学]