系统性红斑狼疮患者自我管理水平及影响因素  

Analysis of self-management level and its influencing factors in patients with systemic lupus erythematosus

作　　者：徐慧 刘梨花 赵志娜 郭洪涛[1] 杜明瑞[1] Xu Hui;Liu Lihua;Zhao Zhina;Guo Hongtao;Du Mingrui(Department of Rheumatology and Immunology,the First Affiliated Hospital of Henan University of Traditional Chinese Medicine,Zhengzhou 450003,China)

机构地区：[1]河南中医药大学第一附属医院风湿免疫科,郑州450003

出　　处：《中华健康管理学杂志》2023年第7期520-524,共5页Chinese Journal of Health Management

基　　金：河南省中医药传承与创新人才工程(仲景工程)中医药学科拔尖人才(CZ0262-15)。

摘　　要：目的分析系统性红斑狼疮(SLE)患者自我管理水平及其影响因素。方法本研究为横断面研究,于2021年1—12月通过便利抽样法选取河南中医药大学第一附属医院风湿免疫科SLE患者为研究对象。本研究共发放135份问卷,收回135份,有效问卷128份。收集患者一般资料,采用慢性病自我管理行为量表、一般自我效能感量表(GSES)、家庭关怀度指数问卷(APGAR)、生命意义感量表(MLQ)评估患者自我管理水平、自我效能、家庭关怀、生命意义感,纳入多重线性回归分析,探讨影响SLE患者自我管理的因素。结果128例SLE患者慢性病自我管理行为量表总得分为(28.77±6.58)分。Pearson相关性分析显示,自我效能、生命意义感与自我管理之间存在强相关性(r=0.748、0.717,均P<0.001),家庭关怀与自我管理之间存在中等程度相关(r=0.560,P<0.001)。多重线性回归分析显示,受教育程度(β′=0.457)、疾病活动度(β′=-0.211)、自我效能(β′=-0.372)、家庭关怀(β′=-0.510)、生命意义感(β′=-0.386)是SLE患者自我管理水平的影响因素(均P<0.05)。结论SLE患者自我管理水平有待提高,疾病活动度、自我效能、生命意义感等因素均可影响患者自我管理水平。Objective To analyze the level of self-management and its influencing factors in patients with systemic lupus erythematosus(SLE).Methods A cross-sectional study.From January to December 2021,patients with SLE in the Department of Rheumatology and Immunology in the First Affiliated Hospital of Henan University of Traditional Chinese Medicine were selected as the study objects by convenience sampling method.A total of 135 questionnaires were distributed in this study,135 were recovered,and 128 were valid.The general data of the patients were collected,and the self-management level,self-efficacy,family care and meaning in life of the patients were evaluated with the chronic disease self-management behavior scale,general self-efficacy scale(GSES),family adaption partnership growth affection resolve index(APGAR)and the meaning in life questionnaire(MLQ).Multiple linear regression analysis was applied to explore the factors affecting the self-management of SLE patients.Results The total score of chronic disease self-management behavior scale in the 128 SLE patients was(28.77±6.58)points.Pearson correlation analysis showed strong correlation between self-efficacy,sense of life meaning and self-management(r=0.748,0.717,both P<0.001),there was a moderate correlation between family care and self-management(r=0.560,P<0.001).Multiple linear regression analysis showed that educational level(β′=0.457),disease activity(β′=-0.211),self-efficacy(β′=-0.372),family care(β′=-0.510),meaning in life(β′=-0.386)were influencing factors of self-management level in patients with SLE(all P<0.05).Conclusions The self-management level of SLE patients needs to be improved.Disease activity,self-efficacy,meaning in life and other factors can affect the patients′self-management level.

关 键 词：红斑狼疮 系统性 自我效验 影响因素 

分 类 号：R473.5[医药卫生—护理学]