以家庭为中心的儿科预立医疗照护计划研究进展  

Research progress on family-centered pediatric Advance Care Planning

作　　者：张璐 黄月霖 伍晓琴 杨婷 陈佳增 傅静 ZHANG Lu;HUANG Yuelin;WU Xiaoqin;YANG Ting;CHEN Jiazeng;FU Jing(School of Nursing,Southwest Medical University,Luzhou,Sichuan province,646000,China;不详)

机构地区：[1]西南医科大学护理学院,四川省泸州市646000 [2]西南医科大学附属医院心内科

出　　处：《中国护理管理》2023年第8期1233-1238,共6页Chinese Nursing Management

基　　金：教育部高等学校科学研究发展中心专项课题(ZJXF2022300)。

摘　　要：儿科预立医疗照护计划是儿童安宁疗护的重要环节。由于终末期患儿决策能力缺乏、社会情况复杂、家庭参与决策情况普遍等特殊性,发展适合我国文化背景及医疗需求的儿科预立医疗照护计划的需求强烈。国外现已发展出较为成熟的以家庭为中心的儿科预立医疗照护计划临床干预模式和对话工具,有利于保障患儿自主决定权、增强医疗决策依从性,也能够协助家属共同决策、缓解家属丧亲悲痛。文章对以家庭为中心的儿科预立医疗照护计划发展现状进行综述,阐述其可行性,分析其发展阻力,并提出相关实践策略,以期推动我国儿科预立医疗照护计划的发展。Pediatric Advance Care Planning is an important part of palliative care for children.Due to the lack of decision-making ability,complex social situation,and common family participation in decision-making in terminally period children,there is a strong demand for developing pediatric Advance Care Planning suitable for Chinese cultural background and medical needs.Family-centered clinical intervention models and dialogue tools for pediatric Advance Care Planning have been developed abroad,which have been shown to be conducive to protecting children's right to independent decisionmaking,enhancing medical decision-making compliance,and assisting families to make joint decisions and alleviate family grief.This paper reviews the current development status of family-centered pediatric Advance Care Planning,expounds its feasibility,analyzes its development resistance and proposes relevant practice strategies,in order to promote the development of pediatric Advance Care Planning in China.

关 键 词：儿科预立医疗照护计划 以家庭为中心 终末期 儿童安宁疗护 临终关怀 

分 类 号：R473.72[医药卫生—护理学] R48[医药卫生—临床医学] R197