反刍性沉思在系统性红斑狼疮患儿父母领悟社会支持与挫败感之间的中介效应  

Mediating effect of rumination between perceived social support and frustration among parents of children with systemic lupus erythematosus

作　　者：葛苏 李成承 李婷[1] 蔡榕[1] GE Su;LI Chengcheng;LI Ting;CAI Rong(Emergency Department Intensive Care Unit,Children’s Hospital of Nanjing Medical University,Nanjing 210000,China)

机构地区：[1]南京医科大学附属儿童医院急诊科重症监护室,南京210000

出　　处：《临床与病理杂志》2023年第7期1415-1423,共9页Journal of Clinical and Pathological Research

基　　金：南京市卫生科技发展项目(YKK22170)。

摘　　要：目的:探讨反刍性沉思在系统性红斑狼疮(systemic lupus erythematosus,SLE)患儿父母领悟社会支持与挫败感之间的中介效应。方法:选取2020年1月至2021年12月于南京医科大学附属儿童医院就诊的SLE患儿的父母235人为调查对象,采用一般资料调查表、挫败感量表、领悟社会支持量表和事件相关性反刍性沉思问卷收集患儿父母资料进行分析。结果:共220例SLE患儿父母完成调查,挫败感得分为33.42±10.15,与领悟社会支持、事件相关反刍性沉思呈负相关(r=-0.317和-0.289,均P<0.01);领悟社会支持与目的性反刍性沉思呈正相关(r=0.137,P<0.05)。多元线性回归分析结果显示:父母的文化程度、对疾病的了解程度、家庭月收入、家庭类型、患儿病程、领悟社会支持、目的性反刍性沉思是患儿父母的挫败感的独立影响因素(均P<0.05);中介效应结果显示:目的性反刍性沉思在领悟社会支持与挫败感之间起部分中介效应,中介效应占总效应的11.89%。结论:SLE患儿父母挫败感水平较高,医护工作者应给予关注,尤其是文化程度较低、家庭收入较低、单亲家庭、患儿病程较长以及目的性反刍性沉思低的父母,领悟社会支持可负向预测SLE患儿父母的挫败感,目的性反刍在其中起部分中介作用。Objective:To explore the mediating effect of rumination between perceived social support and frustration among parents of children with systemic lupus erythematosus(SLE).Methods: A total of 235 parents of children with SLE who visited Children’s Hospital Affiliated to Nanjing Medical University from January 2020 to December 2021 were selected as the research subjects. Their data were surveyed by using the general information questionnaire, Defeat Scale, Perceived Social Support Scale, and Chinese Event Related Rumination Inventory. Results: A total of 220 subjects completed the survey, and the score of frustration was 33.42±10.15, and which was negatively correlated with perceived social support (r=−0.317, P<0.01) and event-related rumination (r=−0.289, P<0.01);there was a positive correlation between perceived social support and deliberate rumination (r=0.137, P<0.05). Multiple linear regression analysis showed that parents’ education level, degree of disease knowledge, family monthly income, family type, children’s disease course, perceived social support, and deliberate rumination were independent influencing factors of subjects’ frustration (all P< 0.05);Mediation effect showed that deliberate rumination partially mediated the relationship between perceived social support and frustration, and the mediation effect accounted for 11.89% of the total effect. Conclusion: The parents of children with SLE have a high level of frustration, and medical workers should pay attention to them, especially to parents with low educational level and low family income, single-parent families, children with a long course of disease and low deliberate rumination. Perceived social support can negatively predict the frustration among parents of children with SLE, and the direct relationship is partially mediated by deliberate rumination.

关 键 词：儿童系统性红斑狼疮 挫败感 领悟社会支持 反刍性沉思 中介效应 

分 类 号：R473.72[医药卫生—护理学]