基于支气管扩张症生存质量评价量表探讨病证结合量表的研制  

Development of Scales on the Mode of Combination of Disease and Syndrome:Based on Quality of Life Assessment Scales for Bronchiectasis

作　　者：任嘉铭 谢洋 郭楠楠 REN Jiaming;XIE Yang;GUO Nannan(Co-construction Collaborative Innovation Center for Chinese Medicine and Respiratory Diseases by Henan Province&Education Ministry of P.R.China,Henan University of Chinese Medicine,Zhengzhou,450046;First Affiliated Hospital of Henan Universityof ChineseMedicine)

机构地区：[1]河南中医药大学呼吸疾病中医药防治省部共建协同创新中心,河南省郑州市450046 [2]河南中医药大学第一附属医院

出　　处：《中医杂志》2023年第18期1872-1876,1889,共6页Journal of Traditional Chinese Medicine

基　　金：国家自然科学基金(81830116,81674098);中华中医药学会青年人才托举工程项目(CACM-2019-QNRC2-B02);河南省卫生健康委中医药传承与创新人才工程(仲景工程)中医药拔尖人才项目(2022ZYBJ03);河南省科学技术厅优秀青年科学基金(212300410056);河南省卫生健康委2022年度河南省医学科技攻关计划(LHGJ20220586)。

摘　　要：基于当前国内外常用支气管扩张症(BE)生存质量评价量表的研究现状,从基本框架、领域、条目池、应用现状及质量评估方面比较分析各量表的特点和差异,为BE病证结合量表的研制及应用提供依据。现有12个可用于BE生存质量评价的测评工具,信度、效度、反应度均较好,但其中只有支气管扩张症生活质量问卷、支气管扩张症健康问卷是专门为支气管扩张症患者生存质量评价而研制的。而这些量表研制过程多基于西方文化与现代医学背景,难以凸显中医药特色和优势;量表内容缺少BE患者最为关注的结局指标,不能全面反映患者主观感受;量表研制和评价缺少临床研究数据支撑和方法学指导。在中医辨证论治指导下,研制病证结合量表可以体现中医特点,反映患者真实感受,弥补现存量表的不足。建议在分析国内外量表基础上,充分考虑我国国情与中医学特色,构建病证结合理论模型,以患者为中心,研制适宜国人使用的支气管扩张症病证结合量表,并在方法学指导下进行量表评估。This paper summarized the current status of the commonly used quality of life assessment scales of bronchiectasis(BE)at home and abroad,and compared the characteristics and differences of each scale from the basic framework,domain,item pool,application status and quality assessment,so as to provide a basis for the development and application of scales based on the mode of combination of disease and syndrome.There are currently 12 assessment tools for evaluating the quality of life in BE with good reliability,validity,and responsiveness,but only quality of life-bronchiectasis(QOL-B)and bronchiectasis health questionnaire(BHQ)are specifically developed for BE patients.The development process of these scales is mostly rooted in western culture and modern medicine,making it difficult to highlight the characteristics and advantages of traditional Chinese medicine(TCM).The content of the scales lacks the outcome indicators that BE patients are most concerned about,and cannot fully reflect the subjective feelings of patients.The development and assessment of scales lacks clinical research data and methodological support.Under the guidance of TCM syndrome differentiation and treatment,the development of scales based on the mode of combination of disease and syndrome can emerge the characteristics of TCM,reflect the true feelings of patients,and make up for the limitations of the existing scales of BE.Therefore,based on domestic and international scales,factors of China's national conditions and cultural characteristics of TCM should be considered to develop the scale suitable for Chinese people,which requires the construction of a theoretical model for the combination of disease and syndrome,by taking patients as the center and evaluating the performance and quality of the scale.

关 键 词：支气管扩张症 生存质量量表 病证结合 

分 类 号：R259[医药卫生—中西医结合]