中国ESRD患者生存质量量表的系统综述  

A systematic review of the scales for quality of life in end-stage renal disease patients in China

作　　者：武丹 张蓓蓓[1] 李阳 谢坤 陈波[2] WU Dan;ZHANG Bei-bei;LI Yang;XIE Kun;CHEN Bo(Department of Medical Information&Engineering,Kang Da College of Nanjing Medical University,Lianyungang 222000,China;Department of Nephrology,Lianyungang Hospital Affiliated to Nanjing University of Traditional Chinese Medicine,Lianyungang 222000,China)

机构地区：[1]南京医科大学康达学院医学信息工程学部,连云港222000 [2]南京中医药大学附属连云港医院肾内科,连云港222000

出　　处：《中国血液净化》2023年第10期759-762,共4页Chinese Journal of Blood Purification

基　　金：江苏省教育厅2021年度高校哲学社会科学研究一般项目(2021SJA2496)。

摘　　要：目的系统综述与评价目前国内常用的终末期肾病(end-stage renal disease,ESRD)患者生存质量量表,为临床开展生存质量评价及研究提供参考。方法通过中国知网检索2010年以来的国内相关文献,分析各生存质量量表的特性及文献应用现状。结果常用的ESRD患者生存质量量表有6种,其中健康调查简表(the 36-item short form health survey,SF-36)和肾脏病生存质量简表(kidney disease quality of life-short form,KDQOL-SF)应用最为广泛。SF-36是普适性量表,具有短小、灵活、测评时间短的特点,应用比例达63.9%,但缺乏与肾脏病相关的生存质量评价;KDQOL-SF作为特异性量表,更针对肾脏病、透析患者,但测评条目79个,测评所需时间较长。结论开展ESRD患者的生存质量评价研究时,建议根据研究目的、样本量以及患者依从性等综合选择量表。Objective The currently used scales for the assessment of quality of life in end-stage renal disease(ESRD)patients are systematically reviewed and evaluated,so as to provide references for clinical studies of quality of life in these patients.Methods We searched for the scales of quality of life for ESRD patients published in Chinese literature in the CNKI database since 2010.The characteristics and application status of these scales were then assessed.Results There are 6 quality of life scales for ESRD patients,in which the 36-item short form health survey(SF-36)and the kidney disease quality of life-short form(KDQOL-SF)are widely used.SF-36 is a universal scale with the advantages of smaller size,flexible,and short evaluation time,and its application rate is 63.9%.However,SF-36 lacks the evaluation of kidney disease related quality of life.KDQOL-SF is a specific scale for kidney disease and dialysis patients,but KDQOL-SF has 79 items and takes longer examination time.Conclusion The scale for study of the quality of life in ESRD patients should be selected based on the purpose of the study,the sample size,and the compliance degree of the patients.

关 键 词：终末期肾病 透析 生存质量 量表 

分 类 号：R692.5[医药卫生—泌尿科学]