新冠疫情期间艾滋病患者缺药经历的质性研究  

Qualitative Study on Drug Shortage Experience of AIDS Patients during the COVID-19 Epidemic

作　　者：侯思伟 曹静钰 张斌 雷颀 徐立然[1] 郝明玲 付鹏鹏 HOU Siwei;CAO Jingyu;ZHANG Bin;LEI Qi;XU Liran;HAO Mingling;FU Pengpeng(不详;AIDS Research Center of The First Affiliated Hospital of Henan University of Chinese Medicine,Zhengzhou,450000,China)

机构地区：[1]河南中医药大学第一附属医院艾滋病研究中心,河南郑州450000 [2]河南中医药大学护理学院,河南郑州450046 [3]湖南中医药大学人文与管理学院,湖南长沙410000

出　　处：《中国社会医学杂志》2023年第5期549-552,共4页Chinese Journal of Social Medicine

基　　金：国家“十三五”科技重大专项(2017ZX10205502);国家自然科学基金项目(U1604287);河南省中医中药治疗艾滋病试点项目(2004ZYA109)。

摘　　要：目的调查艾滋病患者在新冠疫情期间的缺药经历,为提高突发公共卫生事件下艾滋病药品供应保障能力提供建议。方法通过质性研究中的现象学研究方法,于2022年4-10月在河南省4所医院招募16名新冠疫情期间有过缺药经历的艾滋病患者,运用编制的半结构化访谈提纲对其进行深度访谈,利用Colaizzi 7步分析法进行资料分析。结果提炼出缺乏用药教育、负面情绪加重、害怕身份暴露和渴望社会支持4个主要主题和12个次要主题。结论患者药物治疗相关知识差、服药自我管理能力弱是疫情期间缺药的风险因素,而情绪变化和对疾病的羞耻感直接影响其获取药物的决策与时效。当药物不足时,患者大多尝试向外界求助,且表现出对社会支持的渴望和需求。有关部门应加强患者用药教育,提高患者自我管理能力;重视突发事件下艾滋病药品供应保障能力的提高,加大社会支持力度,注重保护患者隐私,保障患者在突发事件下的药物需求。Objective To investigate the drug shortage experience of AIDS patients during the COVID-19 pandemic,and provide suggestions for improving the drug supply guarantee ability for AIDS patients under public health emergencies.Methods By applying the phenomenology research method in qualitative research,16 AIDS patients who had experienced drug shortage during the pandemic were recruited from 4 hospitals in Henan Province from April to October 2022.The semi-structured interview outline was used to conduct in-depth interviews,and the Colaizzi 7-step analysis method was used to conduct data analysis.Results Four main themes and 12 secondary themes were extracted,the main themes included lack of medication education,aggravation of negative emotions,fear of identity exposure,and desire for social support.Conclusion Poor knowledge of drug therapy and weak self-management ability are risk factors for drug shortage during the pandmic,while emotional changes and shame affect the decision-making and timeliness of obtaining medication.When drugs are insufficient,most patients try to seek help from others and show a desire and need for social support.Relevant departments should strengthen medication education of patients and improve their self-management ability,pay attention to the supply security of AIDS drugs under emergencies,increase social support,be attentive to protecting patients'privacy,and ensure their drug supply.

关 键 词：艾滋病 缺药 COVID-19 质性研究 

分 类 号：R512.91[医药卫生—内科学]