成年肺动脉高压患者恐惧疾病进展与生命质量的关系:家庭弹性及领悟社会支持的链式中介效应  

Relationship between fear of progression and quality of life among adult patients with pulmonary hypertension:the chain mediating role of family resilience and perceived social support

作　　者：刘梦琪[1] 王志伟[1] 延泽萍 梁倩 汪晓丽 王九瑞 栾晓嵘[3] 李静[4] Liu Mengqi;Wang Zhiwei;Yan Zeping;Liang Qian;Wang Xiaoli;Wang Jiurui;Luan Xiaorong;Li Jing(School of Nursing and Rehabilitation,Shandong University,Jinan 250000,China;Department of Spinal Orthopaedic Surgery Weifang People′s Hospital,Weifang 261000,China;Department of Infection,Qilu Hospital,Shandong University,Jinan 250000,China;Department of Cardiology,Qilu Hospital,Shandong University,Jinan 250000,China)

机构地区：[1]山东大学护理与康复学院,济南250000 [2]山东省潍坊市人民医院脊柱矫正外科,潍坊261000 [3]山东大学齐鲁医院医院感染处,济南250000 [4]山东大学齐鲁医院心内科,济南250000

出　　处：《中国实用护理杂志》2023年第27期2105-2112,共8页Chinese Journal of Practical Nursing

基　　金：山东省自然科学基金面上项目(ZR2020MG071);中华护理学会科研课题(ZHKY 201922)。

摘　　要：目的探讨成年肺动脉高压患者家庭弹性及领悟社会支持在恐惧疾病进展与生命质量间的中介作用,为基层医护人员深入了解及改善成年肺动脉高压患者长期生命质量提供指导。方法采用横断面调查研究方法,便利抽样选取2021年7月至2022年2月就诊于山东大学齐鲁医院的219例成年肺动脉高压患者作为研究对象。使用世界卫生组织生命质量调查表简表(WHOQOL-BREF)、领悟社会支持量表(PSSS)、家庭弹性评定量表中文简化版(FRAS-C)及中文版恐惧疾病进展简化量表(FoP-Q-SF)对肺动脉高压患者进行问卷调查。通过建立结构方程模型评价家庭弹性及领悟社会支持在恐惧疾病进展和生命质量间的中介效应。结果成年肺动脉高压患者WHOQOL-BREF得分为(45.85±10.22)分;PSSS得分为66(56,75)分;FRAS-C得分为94(89,97)分;FoP-Q-SF得分为39(32,46)分。成年肺动脉高压患者生命质量与恐惧疾病进展呈负相关(r=-0.63,P<0.01),与家庭弹性及领悟社会支持呈正相关(r=0.54、0.46,均P<0.01)。家庭弹性在恐惧疾病进展及生命质量之间起部分中介作用,占总效应的13.43%;家庭弹性及领悟社会支持在恐惧疾病进展及生命质量之间起链式中介作用,占总效应的2.71%。结论成年肺动脉高压患者家庭弹性及领悟社会支持在恐惧疾病进展与生命质量间起中介作用,社区医护人员可通过提高患者家庭弹性及领悟社会支持改善其恐惧疾病进展及生命质量。Objective To explore the mediating roles of family resilience and perceived social support between fear of progression and quality of life in patients with adult pulmonary hypertension,so as to provide guidance for grassroots medical staff to deeply understand and improve the long-term quality of life of adult pulmonary hypertension patients.Methods Using a convenience sampling method,219 adult pulmonary hypertension patients who attended Qilu Hospital,Shandong University from July 2021 to February 2022 were selected for a cross-sectional study using the World Health Organization Quality of Life Questionnaire Abbreviated Version(WHOQOL-BREF),Perceived Social Support Scale(PSSS),Shortened Chinese version of the Family Resilience Assessment Scale(FRAS-C)and Chinese version of Fear of Progression Questionnaire-Short Form(FoP-Q-SF)for investigation.A structural equation model was established to evaluate the mediating effect of family resilience and perceived social support on fear of progression and quality of life.Results The scores of WHOQOL-BREF,PSSS,FRAS-C,and FoP-Q-SF were(45.85±10.22),66(56,75),94(89,97)and 39(32,46)points in adult pulmonary hypertension patients.The total scores of WHOQOL-BREF were negatively correlated with FoP-Q-SF(r=-0.63,P<0.01),and positively correlated with FRAS-C and PSSS(r=0.54,0.46,both P<0.01).Family resilience played a partial mediating role between fear of progression and quality of life,accounting for 13.43%of the total effect.Family resilience and perceived social support played a chain mediating role between fear of progression and quality of life,accounting for 2.71%of the total effect.Conclusions Family resilience-perceived social support play mediating roles between fear of progression and quality of life,healthcare workers can alleviate fear of progression and improve quality of life by promoting the levels of family resilience and perceived social support of adult pulmonary hypertension parents.

关 键 词：成年人 生活质量 肺动脉高压 领悟社会支持 家庭弹性 恐惧疾病进展 影响因素 

分 类 号：R473.5[医药卫生—护理学]