美国儿童临终关怀服务的特点及启示  

The Characteristics and Inspiration of Children’s Hospice Care Services in the United States

作　　者：李宇涵 葛依琳 LI Yuhan;GE Yiin(School of Preschool Education,Changsha Normal University,Changsha 410100 China;Music College of Hunan Normal University,Changsha 410012 China)

机构地区：[1]长沙师范学院学前教育学院,长沙410100 [2]湖南师范大学音乐学院,长沙410012

出　　处：《学前教育研究》2023年第11期73-78,共6页Studies in Early Childhood Education

摘　　要：儿童临终关怀旨在改善患有危及生命疾病的儿童及其家庭的生活质量。美国儿童临终关怀有以下显著特点:服务机构多、受众人群广、资金有保障;重视患儿及家庭的不同需要,并据此开展个性化服务;通过跨学科团队合作,开展音乐治疗等综合措施,为患儿及家庭提供多样化照护。借鉴美国的经验,结合我国儿童临终关怀服务的现状,为推动我国儿童临终关怀事业的发展,实践中应坚持以患儿为主体、以家庭为中心的价值导向,增设儿童临终病房和社会服务机构,建设多学科融合的服务团队和模式,科学应用音乐治疗等综合性非医疗手段。Children’s hospice care aims to improve the quality of life for children with lifethreatening illnesses and their families.There are many hospice care service institutions for children in the United States,with a guaranteed fund.These institutions emphasize the different needs of children and families,and provide personalized services,and provide diverse care through interdisciplinary teamwork.In order to promote the development of children’s hospice care in our country,we should adhere to the value orientation of taking children as the main body and family as the center in practice,increase the number of children’s hospice wards and social service institutions,build a multidisciplinary service team and model,and scientifically apply music therapy and other comprehensive nonmedical methods.

关 键 词：儿童 临终关怀 美国 家庭 音乐治疗 

分 类 号：R48[医药卫生—临床医学] C913.5[经济管理] D771.2[社会学]