结直肠癌造口患者配偶家庭抗逆力体验的质性研究  

The experience of family resilience of spouses in patients with colorectal cancer undergoing enterostomy:a qualitative study

作　　者：杨芳芳 梁晗 张瑾 冯芳茗[2] 吕桂芬 张伟英[3] Yang Fangfang;Liang Han;Zhang Jin;Feng Fangming;Lyu Guifen;Zhang Weiying(School of Medicine,Tongji University,Shanghai 200092,China;VIP Ward of Oncology,East Hospital Affiliated to Tongji University,Shanghai 200120,China;Nursing Department,East Hospital Affiliated to Tongji University,Shanghai 200120,China;Department of Anorectal Surgery,East Hospital Affiliated to Tongji University,Shanghai 200120,China)

机构地区：[1]同济大学医学院,上海200092 [2]同济大学附属东方医院肿瘤特需病房,上海200120 [3]同济大学附属东方医院护理部,上海200120 [4]同济大学附属东方医院肛肠外科,上海200120

出　　处：《中国实用护理杂志》2023年第33期2592-2597,共6页Chinese Journal of Practical Nursing

基　　金：上海市浦东新区卫生系统领先人才培养计划(PWRl2020-10);上海市东方医院人才引进科研项目(DFRC2017017);上海市东方医院天使计划暨青年护士成长计划(DFTS-2261)。

摘　　要：目的了解结直肠癌造口患者配偶在照护过程中的家庭抗逆力体验, 为临床制订有效护理干预措施提供参考依据。方法采用目的抽样法, 选取2023年3—4月在同济大学附属东方医院住院的结直肠癌造口患者配偶为研究对象。采用现象学研究方法, 对10名结直肠癌造口患者的配偶进行半结构式深入访谈, 运用Colaizzi 7步分析法对访谈资料进行分析。结果共提炼出3个主题, 分别为家庭危机与应对压力(照护负担加重、伴随情绪内耗、经济压力沉重)、家庭内部调整与适应(积极正向的家庭信念、家庭角色的适时调整、清晰有效的沟通互动)、家庭外部资源整合与利用(主动获取信息、医护专业支持、社会外部支持)。结论医护人员应借助家庭优势视角, 重视对结直肠癌造口患者配偶照护需求和家庭抗逆力的评估, 充分调动优势资源, 给予有效干预措施以提高患者及其配偶的家庭和社会适应水平。Objective To describe the family resilience experience of colorectal cancer patients′spouses in the process of care,and to provide reference for making effective clinical nursing interventions.Methods Objective sampling method was used to select the spouses of colorectal cancer patients who were hospitalized in Shanghai East Hospital from March to April 2023.A phenomenological research was used.Semi-structured,in-depth interviews were conducted with 10 spouses of colorectal cancer patients undergoing colostomy.Data was transcribed and analyzed using Colaizzi′s method.Results Three themes were extracted:family crisis and coping pressure including increased burden of care,accompanying emotional internal friction,heavy economic pressure;internal adjustment and adaptation within the family including positive family beliefs,timely adjustment of family roles,clear and effective communication and interaction;integration and utilization of external resources including active access to information,medical professional support,social external support.Conclusions With the help of the perspective of family advantage,medical staff should pay attention to the evaluation of care needs and family resilience of colorectal cancer patients′spouses,to fully mobilize advantage resources and give effective intervention measures to improve the family and social adaptation level of patients and their spouses.

关 键 词：定性研究 结直肠肿瘤 造口术 配偶 家庭抗逆力 照护 

分 类 号：R473.73[医药卫生—护理学]